Re: Re: anyone with similar symptoms? to Donna H.

[Guest guest]

How do you both like Dr. ODonnel? I am working with a UofM neurologist and hoping to get through the learning curve with her. She is good, but doesn't understand the full extent of Craig's problems yet. Bringing video footage to her next week.

Donna,

I also live in Grand Rapids. Chelsea does not see Dr O'Donnel, but last year we made the switch and see another neuro in the same office. I could not be happier with him, and he is also very mito knowledgeable. I would highly recommend any of the neuros there, if you are not happy with who you already see. . .

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

[Guest guest]

Donna,

I really like Dr. Odonell. She really cares for

her patients thankfully for us Josh is not severly

affected by mito, all he deals with is excercise

problems (sore muscles, heavy breathing) so for more

severe cases I cannot tell you.

Dawn

--- jayvelde@... wrote:

>

> In a message dated 4/22/2005 9:37:31 A.M. Eastern

> Standard Time,

> donnamichele@... writes:

>

> How do you both like Dr. ODonnel? I am working

> with a UofM

> neurologist and hoping to get through the learning

> curve with her.

> She is good, but doesn't understand the full extent

> of Craig's

> problems yet. Bringing video footage to her next

> week.

>

>

>

> Donna,

> I also live in Grand Rapids. Chelsea does not see Dr

> O'Donnel, but last year

> we made the switch and see another neuro in the same

> office. I could not be

> happier with him, and he is also very mito

> knowledgeable. I would highly

> recommend any of the neuros there, if you are not

> happy with who you already see.

> . .

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA

> nonspecific mito)

>

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