Re: Introductions - more

[Guest guest]

Oh yeah, that's me with Sheldon in the picture. I'm 37, not the

young kid I appear to be sometimes.

I've been thinking that it would be

nice if we all re-introduced

ourselves. There are quite a few new families in the group and it

would be nice to have all the pertinent info on a family in one

e-mail, I think it would make it easier to remember who's who that

way. Plus, I love seeing photos of the mito kids. And wouldn't it

be

nice if we had photos of ourselves too, so we can see who we're

talking to?

Anyway, just a thought, anyone who wants to and has a free moment

is

welcome to send an e-mail.

So I'll go first. I'm Stacey Fleming. My husband Ken and I have 3

children. , 12, who is healthy and plays piano. Kelsey, 11,

is

also healthy. She is a big help with Sheldon and plays the flute.

Sheldon is 3 1/2 and has PDH Deficiency (a mitochondrial

disorder).

Sheldon is nonverbal, has developmental delays, reflux, is delayed

in

all areas, sensory integration problems, pronated feet, low muscle

tone, esophageal dysmotility, I don't remember what else right

now.

He was in the hospital for 8 days earlier this month (over Easter

) with a virus so we're still recovering from that.

Every free moment I have right now is spent trying to get our

house

ready to sell, we have to sell it because we can't afford it on

one

income and I can't work because I'm home caring for Sheldon. Oh

yeah,

we live in Malta, NY.

I'll attach one photo but I know not everyone receives photos with

the e-mails so I've put updated photos in the photos area on the

yahoo mito group site under 'Sheldon and Family.'

I don't know what I'd do without this group, it is so good to be

able

to talk with others who are going through the same things.

Stacey