Should they be screening my daughter before Keto diet?

[Guest guest]

My 2 1/2 year old is scheduled to start the Keto diet May 31st for

Pyruvate Dehydrogenase Complex Deficiency. Is there anything that

would not make her a candidate to your knowledge? Are there any

dangers, as far as if she had some other health issue? They have done

no screening of any kind, they just figure she should be on it, since

only treatment.

Thank you!

L

[Guest guest]

My son was about about 11 months when he went in the hospital for the

keto diet. I don't recall having any real screening other than making

sure that his overall health was fairly " good " (considering) and

stable. I think that they would also want to be fairly sure that the

PDH diagnosis is fairly conclusive because the keto diet can have

disadvantageous effects if the disorder is a pyrruvate carboxylase

(spelling?) deficiency rather than PDH. If the PDH diagnosis is

pretty conclusive, there is at least one research study showing the

child had a positive effect with the keto diet, so why not try it? My

son's doctor was concerned about fasting him because of the mito

disorder, which is standard operating procedure for most kids who go on

to the diet for seizure control. Typically they want to fast the child

until they're in ketosis and then start implementing the diet slowly

over a few days. Since my doc didn't want to fast my son, we just

started the diet slowly and let him go into ketosis that way. It

seemed to work alright, but he's been out of ketosis for a month now

and we can't figure out why. But anyway, overall he's tolerated the

diet well. Be patient with the diet because it can be a struggle

getting them into ketosis. In fact, my son had increased seizures

going into ketosis but levels out once he's been in it for a few days.

Good luck!!

>

> My 2 1/2 year old is scheduled to start the Keto diet May 31st for

> Pyruvate Dehydrogenase Complex Deficiency. Is there anything that

> would not make her a candidate to your knowledge? Are there any

> dangers, as far as if she had some other health issue? They have

done

> no screening of any kind, they just figure she should be on it, since

> only treatment.

> Thank you!

> L

[Guest guest]

Hi ,

I was told by our mito doc that the keto diet was actually used as a treatment for PDD and there were lots of testaments and studies pertaining to the diet's effectiveness with this particular disease. That might be why they've just systematically prescribed the diet for your daughter without much hestitation. Contrary to that, we couldn't find a lot of mito kids with any other mito diseases who at the time, had successfully responded to the diet.

I don't know if this is helpful but that's what I know about PDD and the keto diet.

Take care,

and Kirkland (Complex One Deficiency and was on the keto diet for one year with minimal results but many complications)

www.caringbridge.org/canada/kirklandk/

ikeleclaire wrote:

My 2 1/2 year old is scheduled to start the Keto diet May 31st for Pyruvate Dehydrogenase Complex Deficiency. Is there anything that would not make her a candidate to your knowledge? Are there any dangers, as far as if she had some other health issue? They have done no screening of any kind, they just figure she should be on it, since only treatment. Thank you! LPlease contact mito-owner with any problems or questions. __________________________________________________