Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 Hi, We're from California and we have a 3.5 yo daughter. We've been thinking about doing a muscle biopsy at Stanford and we have some general questions about the procedure... 1. How long is the procedure? 2. Does the child need general or local anaesthesia? 3. How long is recovery time? 4. Is it too painful/invasive for the child? 5. I read couple of posts that said CoQ10 could affect the results. Our daughter has been on 60 mg daily since January 2005. Should we take her off it (and how long should we wait) before we do the test. Thanks!! Gayathri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 Our daughter had her muscle biopsy done at Cleveland Clinic. She did rather well, but had some pain issues. She also had a liver wedge biopsy done at the same time, so cannot comment about the pain issues. As far as sedation goes, it probally will be reccomended that she is under general anesthetic. I think adults are usually awake, but children seem to always be sedated. I think Grace was in surgery for about an hour, but this included the time with anesthsia and coordinating the courier to pick up the biopsy's in the O.R. to be taken directly to the lab (at another hospital.) Now she has about a one inch scar on her right thigh. It is up high enough that it is virtually invisible unless she is in a bathing suit. Overall it was not a major event, and gave us alot of info on her disease. Best wishes Find just what you're after with the new, more precise MSN Search - try it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 Hi just wanted to try and answer some of your questions. Children do need a general anesthesia for a muscle biopsy. The procedure itself does not take that long, but you have to allow time for letting the child be put to sleep and then for waking up. Every child's pain tolerance is going to be different but within a week or so they should be completely back to normal. Your doc should give you tips on adequate pain control. It is an invasive procedure so there is always the risk of infection and there are the risks associated with having general anesthesia. Sorry, I can't help with the question about the Co-Q-10 but your neuro doc should be able to give you an answer about that. Remember this is your baby so ask every question you can think of before deciding what to do and don't let the docs pressure you. You know in your heart which path you need to follow. Meagan, Mom to Sophia (11 months) www.caringbridge.org/ky/sophiesong__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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