Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 Im debating whether to take to the Shriners hospital in Montreal... I dont quite understand what they do... Right now he wears AFO's intermittently when his legs are problematic, and he will need a new pair (which we wont be able to afford) in about 5-6 months (do Shriners make them? how much do they charge??) I guess what im curious about is this, We are seeing doctors locally, and he is being treated here... is there more that Shriners can do for him than we are already recieving here? Thanks for any input! Keely (mom to , 28 months, Complex 1, and Tyler 9 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 Don't know too much personally about that particular hospital, sorry. However my father is a Shriner and has told me of what they offer. First of all, do not worry about financiall they will supply anything he needs at no cost to you. Second, they will send him, or bring doctors in to help him with whatever he needs. They are really a great organization and devote everything they can to kids. Best wishes With MSN Spaces email straight to your blog. Upload jokes, photos and more. It's free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Keely, My son is a Shriner's kid. Their hospitals are so great! There is no cost to you for anything your child needs, and they make better orthotics, in my opinion, than anyone else. They will fit and make his AFO's and will even let him pick the colors, and will remake them as often as he needs, again at no cost to you. I would highly recommend Shriner's to any parent that needs orthotics, or any orthopedic needs for their child, they even have a great wheelchair and walker department, and since they work with children only, they have the very best selections and great colors and styles just for the kids. Becca ilikemonstertrucks wrote: Im debating whether to take to the Shriners hospital in Montreal... I dont quite understand what they do... Right now he wears AFO's intermittently when his legs are problematic, and he will need a new pair (which we wont be able to afford) in about 5-6 months (do Shriners make them? how much do they charge??)I guess what im curious about is this, We are seeing doctors locally, and he is being treated here... is there more that Shriners can do for him than we are already recieving here? Thanks for any input!Keely (mom to , 28 months, Complex 1, and Tyler 9 weeks)Please contact mito-owner with any problems or questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Keely, We have been taking Chelsea to Shriner's Hospital in Chicago for 4 or 5 years now. We got into an orthopedist first, but it was a neurologist we were interested in. From the start, the Shriner's neuro was not convinced Chelsea had a mito disease. He reran some testing she already had and then some others. It was he who wanted to test Chelsea for Rett and Angelman Syndrome, his comment was he had seen enough atypical cases of both in his practice not to want to test Chelsea for them. Chelsea is mutation positive for RS, and it was the Shriner's neuro who diagnosed her. Shriner's also offers a wide variety of other services, all free. They specialize in orthopedic and burn surgery. They also do orthitics and lab testing. They have equipment to loan/give out. The Pt gave us a Rifton gait trainer, and we returned the favor by giving them Chelsea's outgrown Rover. I can't remember what else, but they are a great orginization. If it weren't for them and the great drs, we would still be floundering in the unknown. . . e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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