Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 My name is Laurine age 45 and new to this site. I have 4 children ages 22,21,19, and 17. All show some signs of Mito. My oldest daughter started having some problems when she was about 2 years old. She is severly mentally retarded, has severe scoliosis, and was followed by Shriners since she was 8-18 years old. It was Shriners who did a muscle biopsy and found abnormal mitochondrial but they did not know what to do with this information so it was put on the back burner. I had thought about not having anymore children after she was born, but I was already 2 months pregnant with my second daughter. My second child was said to be perfectly normal and my first daughter's problem was probably not genetic. So I went on to have 2 more children, both boys. My youngest was 6 months old when he had a near SIDS. He is a junior in highschool today. When my oldest turned 18 she started having siezures and docs also discovered mitral valve prolapse. I at this time was thought to have MS. I had a fresh biopsy done in June 2004 resulting in a diagnosis of Complex I and III. I had the biopsy done because my oldest daughter would not survive a surgery. After the biopsy results it became very clear what was happening in my family. My grandmother, and her sisters, my mother and her sisters, my sister, myself, and my kids all have symptoms of this horrible but terribly interesting disorder. Oh by the way I am a nurse and it is all very interesting from a nurses point of view. I have been researching this since 1999. You all have been so helpful and I admire your courage and faith. Prayers are with you always. Quote Link to comment Share on other sites More sharing options...
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