Re: Re: Please send prayers To donna and all

[Guest guest]

Well, it's official, he has Mito!!!!! I have felt it in my heart that this is what he has but when you actually hear it and see it on paper my heart breaks. I had to laugh though when he said it's unspecified mito, here we have been looking for a diagnosis for 5 years and it is not specific. He did mention COX deficiency. I am supposed to start him on a cocktail. I have a question though has anyone gotten medicaid to pay for their cocktail supplements? I am not sure of how to afford this. Thank you for all your prayers. It has kept me strong all day.

I am so grateful to finally know SOMETHING.

Bless you all,

craigsstory wrote:

.So sorry to hear about 's accident! I must have missed the post earlier. I have been praying for peace for you.Donna H. (Craig's Mom)> > As I have been sharing with you all, goes to see Dr. Saneto > tomorrow at 2:00. I am glad to see that he is the guest speaker > tomorrow night on the chat. I was also glad to see what was written > about him. We have never seen him before. Our normal neurologist is > referring us to him. I always get a little nervous meeting new > doctor's. > Please pray that our muscle biopsy results are all in. I know that > alot of them are in I just haven't been told yet. > I should be able to sleep tonight and

not let the anxiety get to meas > and I spent several hours in the ER tonight. He loves to > climb and tonight he was on a stump at a friends house and well, he > has 4 stitches in his scrotum! He always waits for me to turn my > back and does what he was told not to do!! Typical boy huh!?!> > You are allin my prayers and thank you all for the support.> > God Bless, > > Please contact mito-owner with any problems or questions. __________________________________________________