Hannahs intro

[Guest guest]

Hi everyone, I think the reintroductions are a great idea. Our story

started with Hannahs arrival from Korea at 9 months. Ironically I

had requested a special needs 4-5 yr old and they asked me if I

would accept a normal infant. I saw her picture, my heart melted

and that was that!!! Within a week of her arrival I knew that

something was wrong. She did not cry, sit up, crawl, roll over or

use her hands. Many Drs said give her time or just said they had no

clue. Meanwhile I taught her to do all these things and she even

walked at 12 1/2 months. Yet she didn't babble or turn to noise or

use her hands except to crawl fisted. She did not play with toys

but did alot of rocking and spinning or just sitting alone. Her

diapers smelled awful and turned brown, she had poor muscle tone and

was not very active. Finally at 2 1/2 I got a neuro to pay

attention to me and he suggested mito. We did a muscle biopsy and

waited and waited. On her 3rd birthday as my now ex was leaving for

work he said oh yah a dr called and she has something wrong and

needs to take a cocktail. Then he left. I started her on the

cocktail, she got glasses and they put tubes in her ears for non

moving eardrums all in a matter of a month. I soon had an active,

responsive, babbling child. She said her first word at 3 1/2. Now

Hannah is 8, has ADHD, GERD, PDD-NOS, Microcephaly, very farsighted,

mild hearing loss, learning disabilities, irregular heartbeat,

anxiety disorder, latex allergy, mild hypotonia that is more

prominant on her right side. She has a stroller wheelchair that we

use for extended shopping or Zoos and such. She walks and runs but

does not have the strength to pedal a bike. She is doing great and

at this point in time is stable. However I am realistic and know

how fast this can all come crashing down. She sees Dr Martha Carlson

in Ann Arbor MI. I'm not thrilled with Dr Carlson but weve had

worse! We live in Bay City Mi.