Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Yes, Craig does see Dr. Carlson in Ann Arbor. What specific diagnosis does Hannah have? How old is she? Did she help in diagnosing her? I like Dr. Carlson personally, but I had a really hard time getting a hold of her when Craig was having a breakdown with seizures last month. I also had a hard time convincing her that he is really having seizures since he's never had seizure activity on an EEG under her observation. We have an appt. this Thursday, and I am bringing video footage. I will decide whether to switch after that appt. A lot of members really like the neurology group at DeVoss Hospital in Grand Rapids. Have you ever considered going there? It's a long way, but so was the Cleveland Clinic. I wish I could find someone who would take us as seriously as Dr. Cohen did, and give us more help and answers. Let me know what you decide to do. It's so nice to " meet " others from Michigan. We live in Lake Orion. Donna H. > > To Donna H- Do you take Craig to Dr Carlson in Ann Arbor? Hannah > sees her and I used to be happy with her but she seems so busy now. I > have a really hard time getting her to sign therapy auths. etc. We > are from Bay City Mi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Hannah was diagnosed by Dr Levin in Saginaw. I have always appreciated that he got us a diagnosis but he has horrible dr manners and his staff is just as bad. When I couldn't take it anymore I switched to dr Holmes at U of M and then he left and we got passed on to Dr Carlson. She is nice to Hannah but doesn't seem to know much more than when we started with her. It just gets frustrating to drive 2 hours for her to say that she looks good and see you in a few months. Hannahs teachers say that she has staring spells like absence seizures but they didn't show up on the eeg so Carlson says they don't exist but I have seen them too. Hannah is another of the unspecified mito kids. She had elevated lactate, elevated citrate synthase, increased lipids, course mitochondrial staining, mitochondrial proliferation but without ragged red fibers. They just say that she doesn't fit the mold of the known mitos so she is unspecified. She is 8. > > Yes, Craig does see Dr. Carlson in Ann Arbor. What specific diagnosis > does Hannah have? How old is she? Did she help in diagnosing her? > > I like Dr. Carlson personally, but I had a really hard time getting a > hold of her when Craig was having a breakdown with seizures last > month. I also had a hard time convincing her that he is really having > seizures since he's never had seizure activity on an EEG under her > observation. We have an appt. this Thursday, and I am bringing video > footage. I will decide whether to switch after that appt. > > A lot of members really like the neurology group at DeVoss Hospital in > Grand Rapids. Have you ever considered going there? It's a long way, > but so was the Cleveland Clinic. I wish I could find someone who would > take us as seriously as Dr. Cohen did, and give us more help and > answers. > > Let me know what you decide to do. It's so nice to " meet " others from > Michigan. We live in Lake Orion. > > Donna H. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.