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Lois

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Sorry this has taken me so long to get back to you. I have been trying

to keep up with the e-mails but it seems like there is lots of activity on

the list lately causing lots more e-mails than usual.

We do use an apnea monitor and I know it is one made for infants rather

than for older children. I was told by our company that they " couldn't " get

a different one and that it is the same one a lot of the local hospitals use

anyway. I have seen it at the hospital but which they could try to get a

more age appropriate one as I have noticed her numbers in all areas are

always worse in the hospital when they use the real expensive multipurpose

computer ran pulse-ox, apnea monitor, and respiration counters. It also

keeps tract of CO2 I believe but the machines are thousands of dollars and

definitely not something we could ever acquire. Our apnea monitor is called

the " Smart Monitor 2. " Not sure how it compares with others out there.

Sorry I couldn't help you more. :)

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a

photo look into Mito)

Darla

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It also

> keeps tract of CO2 I believe but the machines are thousands of dollars and

> definitely not something we could ever acquire. Our apnea monitor is called

> the " Smart Monitor 2. " Not sure how it compares with others out there.

> Sorry I couldn't help you more. :)

>

Darla,

The problem with using an infant monitor on someone who is not an infant is,

well, it

does not work well. So what is the point? An infant apnea monitor costs

thousands of

dollars also. Heck, our pulse ox cost about $3500. Your insurance should pay for

an

appropriate monitor if you have DME coverage and your physician orders

monitoring.

Most private insurance will pay for one year of rental or until purchase price

is met.

Medicaid will often pay rental forever.

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Darla,

The company our insurance company goes through for home health has only the

ARVEE monitor, they quit

manufacturing it in the 90's. This is the only one they cover, they say

there is nothing else, BUT, a very nice, very helpful person on the list

pointed me in the right direction for a more suitable monitor, it has a

pulse ox, nothing for CO2 that I am aware of, but is FDA approved

for infants to adults, different settings/ accessories. It is simular in a

lot of ways to ours now, just better, more age appropriate, and has a pulse

ox.

I don't know your insurance info, none of my business, but our insurance is

going to have to go out of network for this, they do not have anything

age appropriate, and we now need the pulse ox also, nothing in network is

suitable. It's going to be a little bit of a pain to get it, but we will.

If your looking for a better, more age appropriate monitor this info might

help you also. The website for the company is www.cassmed.com

the monitor on top is for infants, but the bottom one, model 511 is the one

I'm interested in. The contact info is on the site, and I would call

general customer service if interested, they will give you a lot of info,

also they gave me the cell number for the clinical sales rep, she can tell

you exactly what it does, what it works for, what gets picked up on on the

download, also, she put in a little extra, Mom's advice about my daughter

is needing bi-pap with our latest problems,

she needs more than just an alarm. Anyway, a lot of info, I don't know if

you're even looking or if this helps, but if you are just take a look at

the site. If you are

interested I can give you more info. Hope this even helps. Thank you for

your reply, and yes I have noticed a lot more emails, but I thought it was

me, I've been very

quiet lately, and dealing with a regression with Leighann, and fighting the

good fight to try and get her pulmo to get off his butt and do his job,

shes having breathing issues and they're getting worse. I've ALMOST got a

few of the others to jump, now I've just got to convince him that I'm not

just going to sit by and be quiet.

Anyway, sorry so long, thanks for the help, and I hope this helps also.

Lois

> [Original Message]

>

> To: <Mito >

> Date: 4/27/2005 7:01:35 PM

> Subject: Re: Lois

>

>

>

> It also

> > keeps tract of CO2 I believe but the machines are thousands of dollars

and

> > definitely not something we could ever acquire. Our apnea monitor is

called

> > the " Smart Monitor 2. " Not sure how it compares with others out there.

> > Sorry I couldn't help you more. :)

> >

>

> Darla,

>

> The problem with using an infant monitor on someone who is not an infant

is, well, it

> does not work well. So what is the point? An infant apnea monitor costs

thousands of

> dollars also. Heck, our pulse ox cost about $3500. Your insurance should

pay for an

> appropriate monitor if you have DME coverage and your physician orders

monitoring.

> Most private insurance will pay for one year of rental or until purchase

price is met.

> Medicaid will often pay rental forever.

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

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