Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 We had a son born with COX IV - normal pregnancy, normal labor/delivery - and had trouble soon after birth and passed away three months later. You can get more info at : www.geocities.com/thirdborn_2004 www.connor-irwin.memory-of.com http://www.walkamerica.org/thridborn_2004 We are considering trying agin but the 25% thing has us worried. My love and faith are strong but I am concerned and a little scared. My questions: How many have had a child with severe disabilities and/or had a child that passed away and you decided to have another child? If you did what did you do to help get through the stress of waiting and not knowing? Are there any tests to check prenatally (we were told that there are none so far)? I am just looking for a connection and not someone to tell us if we should or shouldn't - just a support base. Thank you ~Dyana You can email me personally at thirdborn_2004@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Grace is our first baby (together) with mito. We knew what our risks would be to have another, and did it anyways. Basicly we put it into Gods hands, and left it at that. Fourtunatly our son was born 7 months ago, healthy. He is highly suspected of having Celiac Disease (gluten senstitivity) but not mito. He is growing remarkably, and is doing great. We are going to re run some bloodwork at a year, just in case. During my pregnancy there were no "extra" tests that could be done. Since we do not know the genetic mutation of Grace, they could not do it for . I did, however, go to my normal OB but was also observed by a perinatologist (who was familiar with mito). He did suggest the 3D ultrasound for the end of my pregnancy to check for birth defects. (Also because it is really cool!!!) I guess it comes down to your own personal decision. We asked ourselves the following questions. Can we handle this again? If our new baby does have mito, could it be more/less severe than our other child? If you decide that having another biological child is not worth the risk, remember there are plenty of other children out there that need homes. Best wishes Get the NEW version of MSN Messenger - it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 I ruminate about this issue daily!!!!!! We had one " normal " son and then the mito son 3 years later. I probably won't again given the 25% chance they quoted me. BUT, had I had the mito son first, I would have had another. IMHO, it is worth the risk to try for a typical kid---Lori, Chris (8) and (5, mito) Try again? > > We had a son born with COX IV - normal pregnancy, normal > labor/delivery - and had trouble soon after birth and passed away > three months later. You can get more info at : > www.geocities.com/thirdborn_2004 > www.connor-irwin.memory-of.com > http://www.walkamerica.org/thridborn_2004 > > We are considering trying agin but the 25% thing has us worried. My > love and faith are strong but I am concerned and a little scared. > > My questions: > > How many have had a child with severe disabilities and/or had a child > that passed away and you decided to have another child? > > If you did what did you do to help get through the stress of waiting > and not knowing? > > Are there any tests to check prenatally (we were told that there are > none so far)? > > I am just looking for a connection and not someone to tell us if we > should or shouldn't - just a support base. > > Thank you ~Dyana > You can email me personally at thirdborn_2004@... > > > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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