Re: Another question re: telling kids about RSS--> Jodi

[Guest guest]

Jodi,

Great point about not giving the kids too much info that they're

not ready to process. My husband and I were talking about this the

other day as to where to start with Olivia since she's never asked

why she's small, or said that she's smaller than her friends, she's

just said that she is small. We had a bit of problem wrapping our

heads around the whole " circle time info session " for the upcoming

kindergarten class but decided that for safety issues it was the way

to go since we have the medical issue of Osteogenesis Imperfecta to

explain as well.

We're hoping it will promote a greater awareness of classroom

safety that it's not ok to push or pick up our friends. We know

that she will break and that there's no one to blame for it but it's

hitting home a little harder now that we're on break #5, Olivia

broke her hip about 5 weeks ago just from a simple fall on the

kitchen floor. We're going to start out with random mentioning of

RSS to see if she picks up on it and go from there but keeping it

simple at the same time. I think the kindergarten kids will set the

tone of circle time by which questions they will ask.

Now we just need an RSS kids story book to be made along with the

adult one, " I Grow Different " , lol.

Take care all!

Leah, mom to Ash 9 and Olivia 4.5, RSS, OI, 19lbs, 33 " , lactulose,

senokot, zantac, cyproheptadine (stopping for a while)

> ,

>

> Most parents have a tendency to tell their kids too much when all

> the kids want is a short, quick answer - just enough for their

minds

> to comprehend.

>

> That being said, you have a great opening for Colin. You just

have

> to sit down and ask him if he ever wondered why Hayden is taller

> than he is. Whatever his response, you can say that he has

> something called -Silver Syndrome which means he has a

harder

> time growing than other kids. Leave it at that unless he asks

> more. Keep it simple when you answer his questions or respond to

> his statements. If you don't make a big deal out of it, then he

> won't either. Once you have given it a name, however, that will

> free you up to use it more and more and he will just let it become

> part of his life. The last thing you want is for him to think

there

> is something " wrong " with him.

>

> I hope this helps and is as clear as I intended it to be. Just

> remember, most kids are happy with just a little info. They don't

> want the book, just the story.

>

> Jodi