Jennfier S. -Perspective on List to newcomers

[Guest guest]

Jenn,

I just wanted to comment on your message. I joined this listserve

when my son, Jake was diagnosed (he was a newborn.) I stayed on for a

month or so, then I had to get off the list. I was a new, first-time

mom of a son with RSS. I was post-partum and just not ready to read

about all the problems associated with RSS. At that point in my life

this list brought me down, as I was not able to handle the problems

discussed on this list. On the outside I had it together. I went to

doctor appointments, had three different therapists in my home on a

weekly basis and had all my friends fooled. I could do it all!!!!!

Ha! Everyone always commented how much I did for Jake and what a

great parent I was. On the inside I was a mess. I just couldn't come

here to this list and be depressed any further.

About a year later I rejoined.

I was ready to be a part of this list. I needed information, support

and advice and it was here. That was about three years ago and I

still faithfully read my RSS digest almost on a daily basis.

We have had our ups and downs, but I know they are just that.... ups

and downs. For every bad day, we have 100 good days.

Now instead of this being a depressing place, it is a place where I

feel welcome, where I fit. If I have a question, someone always has

an answer. And it is like you said, people I have never met (or met

only once) just understand so much more than close friends. It is

nice to know I am not alone.

Alison