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Hi Jodi;-)

Wonderful news!! I am so happy is doing so well! Please e-mail Dr H

now with his height and weight. When Janelle started to do this (she did not

walk but scooted very quickly and stood) she was burning fewer calories than

is now but her weight gain started to skyrocket. It became very

apparent that she had made up her nutritional deficit and was now pounding

on the pounds. Janelle's pulmonary issues did not appreciate the extra

calories at this point.

Dr H now wants the RSS children at about a 15% weight for height. This is so

they do not start to go into premature adrenarche or insulin resistance.

Please watch his weight carefully at this juncture. It is so weird when you

go from trying to get weight on them for so long to needing to monitor for

too much weight gain.

Take Care,

J

>

> Reply-To: RSS-Support

> Date: Thu, 10 Jun 2004 00:01:33 -0000

> To: RSS-Support

> Subject: Backpacks: Dayna and Judith

>

> Thank you both so much for the ideas on where to find and get some

> little backpacks. The issue with the feeding bags and the formula is

> a factor for us. I usually only put no more thna four hours worth of

> formula in 's bag. Typically, no more than 150cc's because

> since his rate is so low, I can't imagine putting enough milk in for

> all day because it will be sitting out way too long for me. I don't

> really know what is the longest formula can stay out and be safe for

> them, but since I am home with him all day, I just keep adding it

> every so often. So, to get to the point, I would have to pump out a

> TON of air out of his bag. It would take me forever to prime that

> much air out. Any suggestions? And, I have noticed that when I do

> prime all the air out, I get an error beep because there is no flow.

> I think it is because it needs a little air to flow. What have you

> guys found, and what are your experiences?

>

> Thanks again for any and all help you can offer,

> Jodi R.

>

>

>

>

>

>

>

>

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Guest guest

,

Yeah, how ironic is this. Remember our phone conversation so long

ago when was in dire straights? I mean, he was so bad off. !

7 months old and only 10 lbs. He looked so sickly and fragile. I

was so worried about him, and so was Dr. H when I emailed her about

him. We went from a January appointment to a late October appt.

Only two weeks from our first email. She was like, get him here

NOW! So, he was so bad, but look at him now. So, he is really at

the 50th percentile, right? I looked on the chart and that is what I

come up with. Are you verifying that? So, I have emailed Dr. H, and

I will see what her response is. I just don't know where to go from

here. Especially with his feedins on the pump!

By the way, 's repers seem to be much better, but he still

breathes fast. See, that was the last thing on Dr. H's mind when she

saw . I wonder what she will think now!?

Jodi

> Hi Jodi;-)

>

> Wonderful news!! I am so happy is doing so well! Please e-

mail Dr H

> now with his height and weight. When Janelle started to do this

(she did not

> walk but scooted very quickly and stood) she was burning fewer

calories than

> is now but her weight gain started to skyrocket. It became

very

> apparent that she had made up her nutritional deficit and was now

pounding

> on the pounds. Janelle's pulmonary issues did not appreciate the

extra

> calories at this point.

>

> Dr H now wants the RSS children at about a 15% weight for height.

This is so

> they do not start to go into premature adrenarche or insulin

resistance.

>

> Please watch his weight carefully at this juncture. It is so weird

when you

> go from trying to get weight on them for so long to needing to

monitor for

> too much weight gain.

>

> Take Care,

>

> J

>

> > From: " Jodi Rollison " <rssboy2002@y...>

> > Reply-To: RSS-Support

> > Date: Thu, 10 Jun 2004 00:01:33 -0000

> > To: RSS-Support

> > Subject: Backpacks: Dayna and Judith

> >

> > Thank you both so much for the ideas on where to find and get some

> > little backpacks. The issue with the feeding bags and the

formula is

> > a factor for us. I usually only put no more thna four hours

worth of

> > formula in 's bag. Typically, no more than 150cc's because

> > since his rate is so low, I can't imagine putting enough milk in

for

> > all day because it will be sitting out way too long for me. I

don't

> > really know what is the longest formula can stay out and be safe

for

> > them, but since I am home with him all day, I just keep adding it

> > every so often. So, to get to the point, I would have to pump

out a

> > TON of air out of his bag. It would take me forever to prime that

> > much air out. Any suggestions? And, I have noticed that when I

do

> > prime all the air out, I get an error beep because there is no

flow.

> > I think it is because it needs a little air to flow. What have you

> > guys found, and what are your experiences?

> >

> > Thanks again for any and all help you can offer,

> > Jodi R.

> >

> >

> >

> >

> >

> >

> >

> >

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