Thanks for all the responses/a little info

[Guest guest]

Thank you for all the responses. Wasn't sure how to reply to

everyone - thus, my " blanket thank-you " . Although I'm not great

at " communicating " (although my husband sais I talk enough for the

entire family), I do appreciate having a network of individuals who

are familiar with RSS. My husband and I chose not to attend the

upcoming convention this July in Chicago on the premise that we like

to take things as they are presented to us and deal with them at that

time - rather than be bombarded with things that do not currently

apply to our situation. I've been quite an advocate for my son since

he was born (5# 16 " ) - thankfully for we finally received a diagnosis

at 9 months. We have been blessed with two children after 6 years of

IVF treatments and our youngest, who has RSS, seems to be coming

along just fine - at 13 mths is now 16# and 27 " . Based on what I've

read and what I've been told by some fabulous physicians - our child

seems to be holding his own. It troubles me to know that there are

more " extreme cases " of RSS and I pray for all those families. It's

comforting to know that " we all " have a place to go (this support

group) in case we do need to talk. I look forward to reading your

posts and thank you again for taking the time to reply to mine.