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is on the charts!

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It's been a while since I posted, so a quick intro for new list members: our son

is 9 years old, had a G-tube from age 2 until last December, and has been on gH

for

the last 2 years.

had an appointment today with his endocrinologist. He has grown another

inch in the past 4 months, and hit a couple of milestones: finally over 4 feet

(almost

49 inches, in fact), and now actually ABOVE the 3rd percentile, in the " white

area " on

the growth chart for the first time! :)

On the downside, he still isn't gaining much weight. He weighs only 44 pounds,

well

below the 3rd percentile, and his weight has been pretty flat for the past year

(only

gained 2 pounds). This is discouraging because his appetite has been so good

since

his G-tube was removed in December, but he still doesn't gain weight. So we're

going to try Periactin again, since he's out of school for the summer (we found

it

made him too sleepy during the school day).

Josh is also showing signs of premature adrenarche (although not early puberty),

so

we're concerned about that, and anxious to hear from Dr. H. on that subject at

the

conference.

We're looking forward to seeing old friends and making new ones at the

conference

next month!

- Joe

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