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- 3:20pm on Wednesday is your Dr. H visit.

I laughed reading your posting about the erratic eating habits-

because I went back and looked up Connor's age. Not yet 2 years

old. So much of what you are writing is what we went through with

my NON-RSS child, my son. He still is the pickiest eater.

I absolutely believe, now, anyway, in the multiple small meal a day

for FTT kids. However, that being said, I try and avoid things with

sugar less than an hour before lunch or dinner, and we will require

everyone to sit down at the 3 primary meals. However, when the kids

were under 6 years old especially, I did not worry about whether or

not they actually ate much at those meals. Meal ended, and we put

it all away. And 60-90 minutes later, I would slide a plate of

crackers and cheese in front of their faces whereever they were

playing. Or a bowl of pinto beans (a favorite at age 2). Again,

not much talking about it. Just kept offering foods about every

hour or so.

You are doing a great job. Keep it up!!!!

> Howdy Folks!

>

> in Virginia here. Connor and I will be at convention

starting

> at about 1:00 p.m. on Wednesday. I'm not sure when we see Dr. H.

> yet, but would love to meet all of our friends from the list

serve.

>

> If any of you read my earlier post about being in a sticky wicket,

> I'd still appreciate any advice or wisdom directed our way. I'm

> going to have to make a decision here soon and I've received a few

> responses. However, wisdom come's in numbers and I would

appreciate

> your info.

>

> Let me ask some broad questions and have you all answer them.

>

> Is it not " normal " for a new treatment (oral desensitation,

lateral

> training, chewing exercises,) to work for a few days, may be even

a

> week, and then the child completely rejects the training and the

> knowledge gained? Dysphagia returns. The child rejects anthing

put

> in their mouth (food included).

>

> Is it normal for your RSS child to have what little appetite they

> have affected by teething, the common cold, allergies, a bad day,

> the terrible two's and just about anything under the sun?

>

> Would you all say (if your child is termed an " eater " ),that five

> days of starvation existence followed by one day of phenomenal

> eating is " normal? "

>

> Has any of your children initially responded to new, high calorie

> foods well, only then to reject them the next day or week?

>

> What works best? A rigid food schedule or grazing? The type of

> eating where the " eating " RSS child can obtain food, even if it's

in

> small quantities?

>

> A typical day for us goes like this. Last night, Connor devoured

> three tablespoons of Hamburger Helper: Cheeseburger flavor.

> Tonight, he wouldn't touch it. Five days ago, Connor ate three

> slices of a Granny Apple. Today, he couldn't even chew

one.

> It was all spitted out. A week ago, Connor ate four Dorito

chips.

> Chewed and swallowed well. Tonight, they gave him a gagging and

> barfing attack. We used to be able to give him yougurt with

> whipping cream mixed in. Now we can't due to a lactose

> sensitivity. He used to like hard boiled eggs. Now he won't

touch

> them. Bacon (a hard food to chew and laterilize) is consumed with

> utter abandon. Vanilla pudding can bring on a dysphagia attack.

>

> Can any of you relate to what I'm saying here? No matter what I

try

> with Connor, it simply doesn't last long. I've accepted that this

> is the nature of RSS and rather than stessing over it, I just try

> something new, or reintroduce something we havne't done for a few

> months. I count our blessings that so far, I've been able to stay

> one step ahead of Connor. He's gaining. His head is growing.

> Developmentally he's right on target. It is a constant struggle,

> but I know that " this too shall pass. "

>

> Please help. Any advice. Any words you would offer my friend

would

> be so appreciated.

>

>

> Mother to Graham 7 - ADD; Cameron 4; Connor IUGR SGA/RSS

Periactin,

> Zantac, Assymetry, Ciphosis.

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