Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 - 3:20pm on Wednesday is your Dr. H visit. I laughed reading your posting about the erratic eating habits- because I went back and looked up Connor's age. Not yet 2 years old. So much of what you are writing is what we went through with my NON-RSS child, my son. He still is the pickiest eater. I absolutely believe, now, anyway, in the multiple small meal a day for FTT kids. However, that being said, I try and avoid things with sugar less than an hour before lunch or dinner, and we will require everyone to sit down at the 3 primary meals. However, when the kids were under 6 years old especially, I did not worry about whether or not they actually ate much at those meals. Meal ended, and we put it all away. And 60-90 minutes later, I would slide a plate of crackers and cheese in front of their faces whereever they were playing. Or a bowl of pinto beans (a favorite at age 2). Again, not much talking about it. Just kept offering foods about every hour or so. You are doing a great job. Keep it up!!!! > Howdy Folks! > > in Virginia here. Connor and I will be at convention starting > at about 1:00 p.m. on Wednesday. I'm not sure when we see Dr. H. > yet, but would love to meet all of our friends from the list serve. > > If any of you read my earlier post about being in a sticky wicket, > I'd still appreciate any advice or wisdom directed our way. I'm > going to have to make a decision here soon and I've received a few > responses. However, wisdom come's in numbers and I would appreciate > your info. > > Let me ask some broad questions and have you all answer them. > > Is it not " normal " for a new treatment (oral desensitation, lateral > training, chewing exercises,) to work for a few days, may be even a > week, and then the child completely rejects the training and the > knowledge gained? Dysphagia returns. The child rejects anthing put > in their mouth (food included). > > Is it normal for your RSS child to have what little appetite they > have affected by teething, the common cold, allergies, a bad day, > the terrible two's and just about anything under the sun? > > Would you all say (if your child is termed an " eater " ),that five > days of starvation existence followed by one day of phenomenal > eating is " normal? " > > Has any of your children initially responded to new, high calorie > foods well, only then to reject them the next day or week? > > What works best? A rigid food schedule or grazing? The type of > eating where the " eating " RSS child can obtain food, even if it's in > small quantities? > > A typical day for us goes like this. Last night, Connor devoured > three tablespoons of Hamburger Helper: Cheeseburger flavor. > Tonight, he wouldn't touch it. Five days ago, Connor ate three > slices of a Granny Apple. Today, he couldn't even chew one. > It was all spitted out. A week ago, Connor ate four Dorito chips. > Chewed and swallowed well. Tonight, they gave him a gagging and > barfing attack. We used to be able to give him yougurt with > whipping cream mixed in. Now we can't due to a lactose > sensitivity. He used to like hard boiled eggs. Now he won't touch > them. Bacon (a hard food to chew and laterilize) is consumed with > utter abandon. Vanilla pudding can bring on a dysphagia attack. > > Can any of you relate to what I'm saying here? No matter what I try > with Connor, it simply doesn't last long. I've accepted that this > is the nature of RSS and rather than stessing over it, I just try > something new, or reintroduce something we havne't done for a few > months. I count our blessings that so far, I've been able to stay > one step ahead of Connor. He's gaining. His head is growing. > Developmentally he's right on target. It is a constant struggle, > but I know that " this too shall pass. " > > Please help. Any advice. Any words you would offer my friend would > be so appreciated. > > > Mother to Graham 7 - ADD; Cameron 4; Connor IUGR SGA/RSS Periactin, > Zantac, Assymetry, Ciphosis. Quote Link to comment Share on other sites More sharing options...
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