Help!

[Guest guest]

Hi Guys,

First, a few comments.

Remind me never to not read the listserve daily again! It has taken

me hours to get through all the postings this month.

Second - many of you wrote in with views regarding whether or not

the listserve was useful vs. too damn scary. From my point of view

as a relatively new member, it is a blessing. Even though my Jillie

is definitely on the severe end of the spectrum for RSS as regards

traits, need for medical interventions and slow development, I look

forward to her getting where most of your kids are. Like some of the

members who have kids on the mild end of the spectrum, being on the

oposite end, I initially felt " left out " . At convention last year,

Jillie was only 1 of 2 kids I saw needing oxygen, in a very small

percentage in the overweight category and generally too sensitive to

cope with the noise generated by 120 " RSS " families. But I find it

invaluable to have other kids with which to measure her progress

against who have the same albeit variable issues as she does. Very

few people get what it is we have to deal with on a daily basis. You

all know what the issues are. And as regards being too scary, I'd

rather know potential problems than be in the dark. But that's just

me - everyone is different.

Now for the issue with which I need help. My original plan was to

come to convention on my own and get some rest and relaxation!

However, Dr H wants to see Jillie at convention and as she is

medically complex, someone has to come with me to care for her as

she is not a candidate for day care. All my plans backfired for a

nurse to come with me and now I have to bring my husband who is

miffed he cannot go to the lectures with me. The problem is my 5 yr

old son Ethan. His Grandma has volunteered to look after him for the

3 days we are away. He loves going there. However, he is going

through this awful stage of being unable to make up his mind. One

minute he wants to come to Chicago with us, the next he wants to

stay in MA with his Grandma. I obviously didn't sign him up for

daycare when I registered and so if he comes, he'll potentially be

stuck in a hotel room for all of Friday and Saturday morning with my

husband who has to spend most of the day feeding or doing therapy

with the Princess. Anyone any suggestions or thoughts?? When we were

there last year, the hotel didn't strike me as being particularly

kid oriented - not much for them to do except go to the pool.

However, I could be wrong, I didn't explore much last year as I was

quite busy with a much more fragile Jillian.

Anyhow, we will be arriving Thurs morning - the 3 or 4 of us! Can't

wiat to meet you all in person!