Re: See you all in Chicago! -

[Guest guest]

Hi !

In answer to your " broad questions " I can only give you my opinion from our

experiences with , but here goes.

I've found that it's completely " normal " for a new treatment to work

initially, and then be rejected. It has happened several times with B. It

also doesn't help that we've changed therapists (in lieu of someone with

" more " experience) and have had to go through the " getting to know him "

phase all over again.

B is affected by anything!! There are some days it feels like the sun must

have risen in the wrong sector of the sky, because he'll just bulk for no

reason at all!!

B has never been termed an " eater " so I can't help you there.

B changes his likes and dislikes very frequently. What works one day, might

not work the next. He was eating yogurt really well at his mom's house, but

wouldn't touch it here without gagging. He " loved " applesauce and

blueberries for two feeding therapies, (got through therapy with no bulking

at all!) and then he totally rejected it! He was actually eating Cheez-It

crackers (albeit slowly - 1/2 a cracker took an hour!! LOL) and now he won't

touch them. He has steadfastly refused to even try a " goldfish " cracker, and

then, the other night at the ball game, he ate 3 of them!!!

There is no rhyme or reason to B's eating. We put him in his high chair, and

do feeding therapy (where we insist that he eat) twice a day, and then we

have him sit with us at dinner, and give him tidbits of whatever we are

having with no pressure to eat, so that he can have a positive experience

with meal time. But B is 100% tube fed, so we don't have to worry that he

isn't getting " enough " calorie-wise either.

I still find all of it totally frustrating!! I have 4 kids, and another

g-child, and I have NEVER had a child that wouldn't eat! I've dealt with

differing degrees of pickiness, but they all ate, they all grew, they all

thrived.

In my head, I totally understand that B has no appetite, and no desire to

put anything in his mouth, but in my heart it feels like I must be doing

something wrong, or his appetite and eating would improve. When it comes to

eating and B, the Serenity Prayer is my mantra! LOL

As far as your friend goes, as a therapist, she must know that not all

therapists and patients click, and that there are times when changes are

necessary. It's not that you don't appreciate all that she's done, or that

she hasn't done enough. It's not that you feel she is " lacking " in skill.

It's NOT personal!! It has to do with what is " best " for Connor, and that is

the angle I would try to approach her from.

Hope this helps!

Pat (g-ma to , RSS, 29 months, 21# 7.6oz, 30.5 " , Prevacid, Singulair,

Miralax, GT)