TED

[Guest guest]

Hi, does anyone use flaxseed oil for swollen eyes? And is it safe? My eyes are

getting worse and I'm about to try anything for relief. I go to the eye dr. next

week but need relief now. I'm not taking any meds at this point got blood work

yesterday will know results in a few days. My endo said that my thyroid has gone

back to it's nor size. I was so happy to hear that does this mean that I'm going

to get better now? I'm almost sure that I'm hypo from what you all have told me.

Is it ok for me to take a multiple vitamin that has iodine in it? is there a

vitamin without it? Thanks. Kim

[Guest guest]

Terri,

I had 10 treatments over a 2 week period Monday-Friday I didn't

lose my hair thank god I already look freaky enough without that

The actual treatments don't hurt The smell leaves alot to be

desired the only way I can describe it is burnt chlorine I was sick

to my stomach so I was given some meds for this The treatments are

very quick the longest part of the whole thing was the CT scans,

xrays and the making of the mask I took off while having the

treatments along with the driving problems from my eyes being

irritated and the nausea it just wasn't worth driving 100 miles a

day between the hospital and my job I hope this help it was soooo

much easier than the steroids for me. Good Luck and remeber I am

praying for you You have been dealing with this for such a long

time Janice

Thanks for the info Janice. How many treatments did you have to

have? I

> have been told that it takes up to 6 months for the full effect to

be seen,

> especially with regards to the double vision. Was it painful?

Did you lose hair?

> Any problem with working while you were on the treatment?

>

> << I also had > tried the steroids on and off for almost a year

the last time

> > on I

> > became so emotionally distraught that I couldn't even make my

self get out

> > of bed I decided then I couldn't take them anymore.>>

>

> They worked for me but only while I was on them, at least at the

60 mg level

> and that's too much to stay on long-term. And sleep? Forget it:-)

>

> <<I know > what you are saying about the stress of working and

driving I had

> > to

> > give up driving at night last Fall I patch my eye to drive now

and go slow

> > Stress relief is a huge thing along with keeping levels normal

I joined a

> > yoga class along with walking and occasionally taking xanex when

needed . This

> > is a very hard disease >>

> > No kidding. I thought I was through with it 20+ years ago!!! I

swim, that

> > helps with the stress. And babysit a 3 year old which helps a

lot too.

> >

> > Terrii

> Graves disease 1979; treated with RAI; exothalmia 1982, treated

with IV

> steroids; since then on one or another form of replacement

hormone. New flare up

> of TED with severe double vision, swelling in intraocular muscles

and

> inflammation in August of 2002. Currently hypoactive. Treated

TED with prednisone.

> It worked while on prednisone, but TED came back worse after. Now

considering

> other options.

>

>

>