Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 Hi, I was diagnosed HyperT/Graves back in Nov 2001. I've been off and on Methimazole & Atenolol since then, due to Dr. Stupid who thought a roller coaster ride would be nice once my levels were " normal " instead of cutting down on the meds to keep me at a normal level. My question is, now that my levels are high, showing HypoT......is it possible that I'll still go back to being HyperT? I'm back with my first Dr who prescribed the meds for me (he was shocked that Dr Stupid did the cold turkey thing) and he cut my meds down, instead of taking them away. He did promise me that it wasn't going to happen again since I'm back with him now. My new Gyno also looked at me rather funny when I told her what meds I was taking and what had happened for the first year I was on the meds. She even said what Dr Stupid did wasn't good to do. (Amen to that) But, I'm confused and wonder if anybody can give me any insight into whether once I'm weaned off the meds, (I hear they don't like you to be on them for longer than 18 months) if the HyperT symptoms might still be there or what to expect? Thanx Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 Hi Sandy, Your info is pretty general, so the response will be too. If you want to share the lab results it could help with specific answers to your questions. But I can say, having had GD since '94, and having been on methimazole/tapazole most of the time since then, that there's absolutely no rational reason to cut you off after 18 months, except perhaps the endo-agenda of moving you towards RAI. Long term use has no side effects! Granny who posts here, has been on for at least 23 years. Sounds like the slow-wean is working for you, what is your current dosage? Terry > > Reply-To: graves_support > Date: Fri, 2 May 2003 19:40:41 -0500 > To: <graves_support > > Subject: Newbie questions.... > > Hi, I was diagnosed HyperT/Graves back in Nov 2001. I've been off and on > Methimazole & Atenolol since then, due to Dr. Stupid who thought a roller > coaster ride would be nice once my levels were " normal " instead of cutting > down on the meds to keep me at a normal level. > > My question is, now that my levels are high, showing HypoT......is it possible > that I'll still go back to being HyperT? I'm back with my first Dr who > prescribed the meds for me (he was shocked that Dr Stupid did the cold turkey > thing) and he cut my meds down, instead of taking them away. He did promise > me that it wasn't going to happen again since I'm back with him now. My new > Gyno also looked at me rather funny when I told her what meds I was taking and > what had happened for the first year I was on the meds. She even said what Dr > Stupid did wasn't good to do. (Amen to that) But, I'm confused and wonder if > anybody can give me any insight into whether once I'm weaned off the meds, (I > hear they don't like you to be on them for longer than 18 months) if the > HyperT symptoms might still be there or what to expect? > > Thanx > Sandy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 My current dosage went from 30 mgs to 20 mgs in the morning. Atenolol is also taken one 50 mg tablet each morning. I'm glad to hear that there isn't any nasty side effects for long term use, cuz I'm just not having RAI. I don't care what they say, it ain't happening. :-) I'll find my test results and post them so you can see where I'm at now. Thanx Sandy Re: Newbie questions.... Hi Sandy, Your info is pretty general, so the response will be too. If you want to share the lab results it could help with specific answers to your questions. But I can say, having had GD since '94, and having been on methimazole/tapazole most of the time since then, that there's absolutely no rational reason to cut you off after 18 months, except perhaps the endo-agenda of moving you towards RAI. Long term use has no side effects! Granny who posts here, has been on for at least 23 years. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 Sandy, One thing you may want to try is splitting your dose, taking it in (ideally) 3 equal parts spread throughout the day, or at the very least, taking 10 mg. in the AM and 10 in the PM. The package insert does say to do this, by the way, even though most endos don't bother telling their patients. I think this is because they (in their wisdom) deem us too irresponsible to take the divided dose consistently. They may be right for some people, I know I resisted splitting dose for a long, long time. Funny thing is, since I've done it, I've been moving steadily towards remission, after being stuck with the same numbers and dose for a long time. I truly thing the body needs not to see-saw at all, even subtly--so the divided dose, which means your body won't at any point run out of medicine, keeps you on an even keel and lets you heal. That's my theory, anyway. Terry > > Reply-To: graves_support > Date: Fri, 2 May 2003 22:38:47 -0500 > To: <graves_support > > Subject: Re: Newbie questions.... > > My current dosage went from 30 mgs to 20 mgs in the morning. Atenolol is also > taken one 50 mg tablet each morning. I'm glad to hear that there isn't any > nasty side effects for long term use, cuz I'm just not having RAI. I don't > care what they say, it ain't happening. :-) > > I'll find my test results and post them so you can see where I'm at now. > > Thanx > Sandy > Re: Newbie questions.... > > > Hi Sandy, > > Your info is pretty general, so the response will be too. If you want to > share the lab results it could help with specific answers to your questions. > But I can say, having had GD since '94, and having been on > methimazole/tapazole most of the time since then, that there's absolutely no > rational reason to cut you off after 18 months, except perhaps the > endo-agenda of moving you towards RAI. Long term use has no side effects! > Granny who posts here, has been on for at least 23 years. >> >> > > > Quote Link to comment Share on other sites More sharing options...
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