Re: Quick ? - Are joint pains worse at night? - to Luci

[Guest guest]

Hi ,

I dread stairs too. I really dread them at work.

I try to take 3 1,000mg flax oil soft gels a day. Mostly I'm good

about it and at night I take 1 vitamin E 400 IU. My latest labs came

back hyper as follows:

T4Free 1.0 range is .8 to1.8

T3Free 288 range is 230-420

TSH .29 (L) range .4-5.5

I was cut down to 100mg PTU a day because last month my TSH was

in " normal range " . My endo wants me to take it only 2a day but I

split into 3 times aday. You just cant tell them a darn thing. I

have comlained about joint/muscular pain and numbsness for ever now

and she tells me, " Not everything is your thyroid you know " So I

limp around,and constantly shake out my wrists. Honestly thought

there are good days too. Like when I'm not at work and I can rest

up!!

Let me know how feel if you up your flax oil. I think it makes my

eyes much less gritty also. Keep me posted!!

Luci

> Hi Luci -

>

> I'm sorry we have the same problem. Yes, I get that same pain in

the knees

> and hips at the end of the day. Knees and hips are definitely the

worst!

> Doesn't seem so bad early on in the day, but gets progrssively

worse. I

> wonder if it has to do with being more tired at the end of the

day. I'm

> guessing so. I dread having to go up or down stairs in the evening.

>

> How much of your flax oil pills are you taking? I have some and

have only

> been taking 1 a day. I wonder if I should increase this? I've been

taking

> them for a while and don't notice any difference in the joint

pains part of

> it. Maybe I'm not taking enough to notice improvement.

>

> Are you getting any labwork soon to check to hypo? I'm counting

the days now

> myself.

>

> Thanks for the sympathy!

>

> >

[Guest guest]

Luci,

Once again I'm mystified by an endo! Your FT4 is low-normal, meaning you're

moving towards hypo. Your FT3 is too. TSH lags behind, and is

meaningless--but not far from the normal range. I had numbers like yours

recently and my endo said " I could keep you on a high enough dose of Tap to

bring your TSH up to the norm, but then you'd be really, really hypo and

miserable. "

Your muscular and joint pain and numbness are no doubt caused by your being

hypo FOR YOU. And your tests reflect that you are close to being hypo for

anybody! Most of us GD people feel best on the high side of FT4, I know I

function best when mine is close to the upper level of normal, say 1.4-1.6.

I have a hard time relating to the PTU dosage since I'm on Tap, but my basic

understanding is that it's 10:1 or thereabouts. Seems to me that lab numbers

like yours, if I was on 10 mg. of Tap I'd be a vegetable. When I got down

that low, I started weaning back my Tap little by little, from 10 mg. down

to 7.5 to 5 and beyond--for me right now, I'm on only a smidgen, probably

the equivalent of 20 mg. of PTU or less. the important thing is, wean down

slow as your body will let you.

Hope this helps!

Terry

>

> Reply-To: graves_support

> Date: Sat, 03 May 2003 02:13:19 -0000

> To: graves_support

> Subject: Re: Quick ? - Are joint pains worse at night? - to

> Luci

>

> Hi ,

> I dread stairs too. I really dread them at work.

> I try to take 3 1,000mg flax oil soft gels a day. Mostly I'm good

> about it and at night I take 1 vitamin E 400 IU. My latest labs came

> back hyper as follows:

> T4Free 1.0 range is .8 to1.8

> T3Free 288 range is 230-420

> TSH .29 (L) range .4-5.5

> I was cut down to 100mg PTU a day because last month my TSH was

> in " normal range " . My endo wants me to take it only 2a day but I

> split into 3 times aday. You just cant tell them a darn thing. I

> have comlained about joint/muscular pain and numbsness for ever now

> and she tells me, " Not everything is your thyroid you know " So I

> limp around,and constantly shake out my wrists. Honestly thought

> there are good days too. Like when I'm not at work and I can rest

> up!!

> Let me know how feel if you up your flax oil. I think it makes my

> eyes much less gritty also. Keep me posted!!

> Luci

>

>

>> Hi Luci -

>>

>> I'm sorry we have the same problem. Yes, I get that same pain in

> the knees

>> and hips at the end of the day. Knees and hips are definitely the

> worst!

>> Doesn't seem so bad early on in the day, but gets progrssively

> worse. I

>> wonder if it has to do with being more tired at the end of the

> day. I'm

>> guessing so. I dread having to go up or down stairs in the evening.

>>

>> How much of your flax oil pills are you taking? I have some and

> have only

>> been taking 1 a day. I wonder if I should increase this? I've been

> taking

>> them for a while and don't notice any difference in the joint

> pains part of

>> it. Maybe I'm not taking enough to notice improvement.

>>

>> Are you getting any labwork soon to check to hypo? I'm counting

> the days now

>> myself.

>>

>> Thanks for the sympathy!

>>

>>>

>

>

>

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[Guest guest]

>>> medtaz165@... 05/02/03 22:14 PM >>>

To those who have joint pain:

You amy have some other type of arthritis along with the Graves, you should

get it checked out.

Aileen

[Guest guest]

>>> medtaz165@... 05/02/03 22:14 PM >>>

To those who have joint pain:

You amy have some other type of arthritis along with the Graves, you should

get it checked out.

Aileen

[Guest guest]

Hi Terry

This helps so much more than you could imagine! All this time I

thought I was stil very hyperT. I was so focused on TSH and was

disappointed when it dropped again. I am very good about taking my

PTU and dont see the endo agin for about 3 more weeks. Actually I

only physically " see " her in her office about every 3 months. She

mails me my results and new lab slips. It actully works for me

because it's less pressure to do RAI. That is a subject she brings

up EVERY visit. Sooo there is a reason I'm in so much pain after

all. I thought my lymes was flairing up or something.

Terry thank you agin so much!!

Luci

> Luci,

>

> Once again I'm mystified by an endo! Your FT4 is low-normal,

meaning you're

> moving towards hypo. Your FT3 is too. TSH lags behind, and is

> meaningless--but not far from the normal range. I had numbers like

yours

> recently and my endo said " I could keep you on a high enough dose

of Tap to

> bring your TSH up to the norm, but then you'd be really, really

hypo and

> miserable. "

>

> Your muscular and joint pain and numbness are no doubt caused by

your being

> hypo FOR YOU. And your tests reflect that you are close to being

hypo for

> anybody! Most of us GD people feel best on the high side of FT4, I

know I

> function best when mine is close to the upper level of normal, say

1.4-1.6.

>

> I have a hard time relating to the PTU dosage since I'm on Tap,

but my basic

> understanding is that it's 10:1 or thereabouts. Seems to me that

lab numbers

> like yours, if I was on 10 mg. of Tap I'd be a vegetable. When I

got down

> that low, I started weaning back my Tap little by little, from 10

mg. down

> to 7.5 to 5 and beyond--for me right now, I'm on only a smidgen,

probably

> the equivalent of 20 mg. of PTU or less. the important thing is,

wean down

> slow as your body will let you.

>

> Hope this helps!

>

> Terry

>