Re: Help! - Convention daycare

[Guest guest]

-

Two things. First, I do not think it is too late to add your son to

the daycare.

Second, I would encourage you to ask MAGIC if there is someone at

the daycare you could call and talk to. MAGIC has a division called

SOD -- septic optic dsyplasia. Some of these children have major

complicated issues, and some are blind. They require special

daycare services, which are met.

If you explained your daughter's issues, you may find that the

daycare can meet your needs. Remember that these are not just high

school kids, it is a professional company. They take intensive

paperwork on your child (you fill it out ahead of time) and all

kinds of stuff.

I can't promise for sure, since I don't know Jillie's issues, but I

know that it may be worth a try, and then your husband could come to

the presentations.

Also, everyone, note that your child is in daycare from about 8:30-

11:30am. Then you pick them up for an hour of lunch, and then you

put them back in daycare from about 12:45 - 4:30pm. So the daycare

folks do NOT feed your child lunch.

If your child needs snacks, etc. they can handle that. They also

are familiar with the multitudes of kids with g-tubes. (many had

them last year).

With any child that has some extra complications, make sure to get

down to the daycare room WELL in advance. If it opens 8-9am, GO AT

8am. Everyone tends to wait until the last minute, and last year

the line was SOOO long and people had to wait about 45 minutes and

then they were late to the presentations. iterally, everyone showed

up to check in their kids at 8:45am.... HA!

Let me know what happens, OK?

> Hi Guys,

>

> First, a few comments.

>

> Remind me never to not read the listserve daily again! It has

taken

> me hours to get through all the postings this month.

>

> Second - many of you wrote in with views regarding whether or not

> the listserve was useful vs. too damn scary. From my point of view

> as a relatively new member, it is a blessing. Even though my

Jillie

> is definitely on the severe end of the spectrum for RSS as regards

> traits, need for medical interventions and slow development, I

look

> forward to her getting where most of your kids are. Like some of

the

> members who have kids on the mild end of the spectrum, being on

the

> oposite end, I initially felt " left out " . At convention last year,

> Jillie was only 1 of 2 kids I saw needing oxygen, in a very small

> percentage in the overweight category and generally too sensitive

to

> cope with the noise generated by 120 " RSS " families. But I find it

> invaluable to have other kids with which to measure her progress

> against who have the same albeit variable issues as she does. Very

> few people get what it is we have to deal with on a daily basis.

You

> all know what the issues are. And as regards being too scary, I'd

> rather know potential problems than be in the dark. But that's

just

> me - everyone is different.

>

> Now for the issue with which I need help. My original plan was to

> come to convention on my own and get some rest and relaxation!

> However, Dr H wants to see Jillie at convention and as she is

> medically complex, someone has to come with me to care for her as

> she is not a candidate for day care. All my plans backfired for a

> nurse to come with me and now I have to bring my husband who is

> miffed he cannot go to the lectures with me. The problem is my 5

yr

> old son Ethan. His Grandma has volunteered to look after him for

the

> 3 days we are away. He loves going there. However, he is going

> through this awful stage of being unable to make up his mind. One

> minute he wants to come to Chicago with us, the next he wants to

> stay in MA with his Grandma. I obviously didn't sign him up for

> daycare when I registered and so if he comes, he'll potentially be

> stuck in a hotel room for all of Friday and Saturday morning with

my

> husband who has to spend most of the day feeding or doing therapy

> with the Princess. Anyone any suggestions or thoughts?? When we

were

> there last year, the hotel didn't strike me as being particularly

> kid oriented - not much for them to do except go to the pool.

> However, I could be wrong, I didn't explore much last year as I

was

> quite busy with a much more fragile Jillian.

>

> Anyhow, we will be arriving Thurs morning - the 3 or 4 of us!

Can't

> wiat to meet you all in person!

>

>