Everybody take a deep breath!

[Guest guest]

Hi everyone, I don't post a lot, but I check out the posts everyday

and I feel the need to comment on the flurry of emotions on the list

recently.

Honestly, I can sympathize with how just about everybody feels! I

have definately noticed a trend over the last maybe,6 weeks, of more

and more " I'm not doing the diet anymore because I've found this

better thing " type posts. The latest postings that have sparked all

of this acrimony are probably just catching most of the flack from a

trend that has been building up some frustration in people.

We are all, if nothing else, passionate, dedicated parents. If we

were the " putting our heads in the sand " types we wouldn't even be

here on this list. Let's face it, when you make the decision to do

this diet it's a pretty dramatic decision and you are forced to

defend yourself endlessly. Naturally, we're all a bit sensitive

about it. We all get to make big, tough decisions with little

professional guidance. Sometimes, just one more alternative can send

you around the bend! And yet, if we hadn't been open to learning new

ideas we would never have tried the diet in the first place. So...I

do want to hear about the new enzymes. And I certainly understand

the zeal of discovering something that works for you child and

needing to share it. (Hey, I'm downright charismatic about bio-

medical interventions myself!)

But.... I can't help thinking about all the people who I know are

lurking out there, trying to decide if they want to start the diet,

or trying to start it (we all remember what that was like!) and just

looking for some clear-cut, reassuring advice and help. They've

gotta be mighty confused right now. The worst thing is, I bet a lot

of people will back away from the whole idea because we appear to be

in such a state of disagreement. I don't think we really are.

FYI, I did go check out the website and the manufacturer's position

on whether or not the enzymes can replace the GFCF diet is, and I

quote, " not yet. " I was thrilled to read their statements that they

are committed to finding the complete enzyme to accomplish that. We

will gratefully remain GFCF for the rest of my kid's lives if we have

to, but that doesn't mean that I don't pray that THE enzyme is found.

Like most people, I'm just cautious, and I don't want to jeopardize

the progress we've made.

The manufacturer makes a valid point. Much as I don't like it, GFCF

isn't for everyone. Raising an autistic child can be an overwhelming

experience. I know more than one wonderful parent who, just quite

simply, cannot handle doing this diet. I thank God that I can.

Those parents include some of my best friends. It's so easy to judge

them, isn't it? Instead, as I continue to prod, maybe this is an

imperfect alternative for some of those friends of mine, and maybe,

just maybe, it will cause some improvement in their child and they

will be inspired to go GFCF.

This is a brave new world isn't it? God bless all of you for having

the courage to ask the questions, and seek the answers. Be proud of

yourselves and be kind to each other.

Sara in Indianapolis

[Guest guest]

>

> This is a brave new world isn't it? God bless all of you for

having

> the courage to ask the questions, and seek the answers. Be proud

of

> yourselves and be kind to each other.

>

> Sara in Indianapolis

After almost five years of searching for something (we've tried meds,

ketogenic diet, vagal nerve stimulator and brain surgery!) to help

with my daughter's seizures, I found this diet in December on an

epilepsy list. I had to have the doctor's signature for the Great

Plains test and was apprehensive about his reaction to my request. I

loved his response. He said that the diet was like alternative

medicine but that conventional medicine had not done anything for us

so it was time to do something else. Also he said that what is now

conventional medicine was once alternative. I have watched this list

for about 3 months and have been overwhelmed by all the

vitamins/supplements/tea/enzymes available. You all are my clinical

trial. I watch for what works and what doesn't and try to make

decisions based on this list.

Please don't stop the communication of ideas and experiences! I

admire you all because you have not accepted status quo with your

child's illness! Happy Mother's Day!!!!

Rhonda

[Guest guest]

Sara,

I couldn't agree more.

At the recent conference here in Detroit, Jon Panghorn talked about using

EnZymaide in addition to the diet. Studies are showing good results. Every

now and then, I see Austin's ears turn a little red and his pupils get big.

I know he has gotten something somewhere.

Evelyn

Mom to Austin (recovered from pdd) and (nt)

5 yr old twins

Everybody take a deep breath!

> Hi everyone, I don't post a lot, but I check out the posts everyday

> and I feel the need to comment on the flurry of emotions on the list

> recently.

>

> Honestly, I can sympathize with how just about everybody feels! I

> have definately noticed a trend over the last maybe,6 weeks, of more

> and more " I'm not doing the diet anymore because I've found this

> better thing " type posts. The latest postings that have sparked all

> of this acrimony are probably just catching most of the flack from a

> trend that has been building up some frustration in people.

>

> We are all, if nothing else, passionate, dedicated parents. If we

> were the " putting our heads in the sand " types we wouldn't even be

> here on this list. Let's face it, when you make the decision to do

> this diet it's a pretty dramatic decision and you are forced to

> defend yourself endlessly. Naturally, we're all a bit sensitive

> about it. We all get to make big, tough decisions with little

> professional guidance. Sometimes, just one more alternative can send

> you around the bend! And yet, if we hadn't been open to learning new

> ideas we would never have tried the diet in the first place. So...I

> do want to hear about the new enzymes. And I certainly understand

> the zeal of discovering something that works for you child and

> needing to share it. (Hey, I'm downright charismatic about bio-

> medical interventions myself!)

>

> But.... I can't help thinking about all the people who I know are

> lurking out there, trying to decide if they want to start the diet,

> or trying to start it (we all remember what that was like!) and just

> looking for some clear-cut, reassuring advice and help. They've

> gotta be mighty confused right now. The worst thing is, I bet a lot

> of people will back away from the whole idea because we appear to be

> in such a state of disagreement. I don't think we really are.

>

> FYI, I did go check out the website and the manufacturer's position

> on whether or not the enzymes can replace the GFCF diet is, and I

> quote, " not yet. " I was thrilled to read their statements that they

> are committed to finding the complete enzyme to accomplish that. We

> will gratefully remain GFCF for the rest of my kid's lives if we have

> to, but that doesn't mean that I don't pray that THE enzyme is found.

> Like most people, I'm just cautious, and I don't want to jeopardize

> the progress we've made.

>

> The manufacturer makes a valid point. Much as I don't like it, GFCF

> isn't for everyone. Raising an autistic child can be an overwhelming

> experience. I know more than one wonderful parent who, just quite

> simply, cannot handle doing this diet. I thank God that I can.

> Those parents include some of my best friends. It's so easy to judge

> them, isn't it? Instead, as I continue to prod, maybe this is an

> imperfect alternative for some of those friends of mine, and maybe,

> just maybe, it will cause some improvement in their child and they

> will be inspired to go GFCF.

>

> This is a brave new world isn't it? God bless all of you for having

> the courage to ask the questions, and seek the answers. Be proud of

> yourselves and be kind to each other.

>

> Sara in Indianapolis

[Guest guest]

Sarab thanks for making sooooo much sense!!!!!