Does it ever get better??

[Guest guest]

You are on 90mg of Tap a day????? Sounds like you are being overdosed to me

and are probably very hypo! I have never heard of anybody taking 90 mg.

Depression, anxiety and fatigue are hypo symptoms.

Please look for a different doctor. If not, you WILL be on a rollercoaster

with this one you are seeing now and it will make RAI look like such a sweet

option....which it is not!

God bless,

<A

HREF= " http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://ho\

metown.aol.com/lisareynolds64/myhomepage/personal.html</A>

[Guest guest]

I have been so sick these last couple of weeks. Today is the first

day I've been online and really have to make myself do this.

I did check with my endo about my Tapozole dose and I am taking it

right..90mg a day. Had more blood work yesterday, hopefully will get

the results either today or tomorrow morning. I am exhausted! I don't

feel well at all. On Tuesday, I couldn't even get up to take my two

girls to school..that was a first for me. Needless to say it didn't

help me feel any better not being able to be a responsible mom!

My depression meds were increased at the same time the propanolo and

tapazole were increased..but I swear, I ain't never felt this bad

before. Mentally and physically. I go back to the endo on the 27th of

May..see my regular doctor next week and I am gonna talk to her then,

if I can make it for a few more days.

Stress I know is making it worse..I am more high stressed out than

I've ever been in my life. I am a single mom and having problems with

their daddy, which doesn't help at all. Coming from someone that used

to work hard everyday to who I am now, someone that can't hardly

move..that alone is killing me. I feel as if I've been ran over by a

18 wheeler and left on the side to die with no one around to help!

I've began to have really bad anxiety attacks that I haven't had

before..thankfully the zanaxs help but I don't want to depend on

stuff like that just to get through the day. GD is really sending me

to the grave it seems..if not physically, then mentally!

Doctor told me last week that I would be on this roller coaster for a

long time..I don't know if I can do it! Even with the RAI..it will be

bad..and the meds don't seem to be working.

Thanks for listening! I am just so tired and bummed out today, as I

have been for a while now. I will post my results tomorrow, if I get

them.

sarah

[Guest guest]

, please don't wait till the 27th. You must speak to your doctor

before the weekend about lowering your dose. Increasing both the Tap to

that degree and the beta blocker sounds very dangerous.

I'm sorry I don't remember your details - how long you've been taking

this, how your dose has been changed, etc. But most people with very

active Graves start at 30 and only go down from there. 60 is usually the

outer range, most often prescribed by doctors who want to bring down the

levels fast in preparation for RAI.

Keep us posted and take care, Fay

P.S. I found one of the most debilitating symptoms to be my total loss of

perspective. I can't say you'll be a Pollyanna two months from now - you

do have an awful lot on your plate - but you really should start feeling

better about life once you're on a normal course of Tap for a while.

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[Guest guest]

Hi ,

I am so terribly suspicious of your doctor! I look at your list of symptoms

and my mind says " of course! " On 90 mg. of Tap, anyone would be hypo, and

those are all hypo symptoms. Trying to cover hypo-induced depression up by

taking antidepressants seems like adding insult to injury, in my mind.

I am so glad you are seeing your regular doc next week. Please call in NOW

and ask her to fax the local lab with a FT4 and TSH request, and get those

tests done so she has the results before your appointment. You won't regret

that decision.

From your final statement about the roller coaster and RAI, I am going to

simply assume your doc is trying to make you so miserable you will readily

accept his recommendation to do RAI. Personally, I'd find another endo in

that case!

Terry

>

> Reply-To: graves_support

> Date: Thu, 08 May 2003 15:18:50 -0000

> To: graves_support

> Subject: Does it ever get better??

>

> I have been so sick these last couple of weeks. Today is the first

> day I've been online and really have to make myself do this.

>

> I did check with my endo about my Tapozole dose and I am taking it

> right..90mg a day. Had more blood work yesterday, hopefully will get

> the results either today or tomorrow morning. I am exhausted! I don't

> feel well at all. On Tuesday, I couldn't even get up to take my two

> girls to school..that was a first for me. Needless to say it didn't

> help me feel any better not being able to be a responsible mom!

>

> My depression meds were increased at the same time the propanolo and

> tapazole were increased..but I swear, I ain't never felt this bad

> before. Mentally and physically. I go back to the endo on the 27th of

> May..see my regular doctor next week and I am gonna talk to her then,

> if I can make it for a few more days.

>

> Stress I know is making it worse..I am more high stressed out than

> I've ever been in my life. I am a single mom and having problems with

> their daddy, which doesn't help at all. Coming from someone that used

> to work hard everyday to who I am now, someone that can't hardly

> move..that alone is killing me. I feel as if I've been ran over by a

> 18 wheeler and left on the side to die with no one around to help!

>

> I've began to have really bad anxiety attacks that I haven't had

> before..thankfully the zanaxs help but I don't want to depend on

> stuff like that just to get through the day. GD is really sending me

> to the grave it seems..if not physically, then mentally!

>

> Doctor told me last week that I would be on this roller coaster for a

> long time..I don't know if I can do it! Even with the RAI..it will be

> bad..and the meds don't seem to be working.

>

> Thanks for listening! I am just so tired and bummed out today, as I

> have been for a while now. I will post my results tomorrow, if I get

> them.

>

> sarah

>

>

>

>

>

> -------------------------------------

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> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

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>

[Guest guest]

, by any chance, is the first option your dr spoke to you about

happen to be RAI? From what I remember both the Endo's I've seen

mentioned that 30 mgs was normal to start off with, and 90 is 3 times

that amount. sheesh. I've read all the responses and have to agree.

This Dr sounds like he has an agenda, one that you may not be

anticipating. I encountered one Dr who kept me on 30 mgs daily and

would zap me off the drugs the minute my levels were what he

considered " normal " and that alone almost took a major toll on me. I

remember reaching a point where I thought RAI looked good, if that

would make me feel better than I did. I can only imagine how tired

you must feel. I finally realized that my Dr was trying to get me to

agree to RAI which he deemed the 'best way' to treat my

HyperT/Graves. :-(

If nothing else, call your local pharmacy and talk to them and ask

what is a normal dose (they can tell you if they will) because I

found out my pharmacist had been to see my #2 Endo and she refused to

go back although we didn't discuss why she felt that way.

Hopefully you'll have some more answers soon, but that high a dosage

just does not sound right. Not for Tapazole or Methimazole. Keep us

posted on what you find out and what your labs are. :-)

> I have been so sick these last couple of weeks. Today is the first

> day I've been online and really have to make myself do this.

>

> I did check with my endo about my Tapozole dose and I am taking it

> right..90mg a day. Had more blood work yesterday, hopefully will

get

> the results either today or tomorrow morning. I am exhausted! I

don't

> feel well at all. On Tuesday, I couldn't even get up to take my two

> girls to school..that was a first for me. Needless to say it didn't

> help me feel any better not being able to be a responsible mom!

>

> My depression meds were increased at the same time the propanolo

and

> tapazole were increased..but I swear, I ain't never felt this bad

> before. Mentally and physically. I go back to the endo on the 27th

of

> May..see my regular doctor next week and I am gonna talk to her

then,

> if I can make it for a few more days.

>

> Stress I know is making it worse..I am more high stressed out than

> I've ever been in my life. I am a single mom and having problems

with

> their daddy, which doesn't help at all. Coming from someone that

used

> to work hard everyday to who I am now, someone that can't hardly

> move..that alone is killing me. I feel as if I've been ran over by

a

> 18 wheeler and left on the side to die with no one around to help!

>

> I've began to have really bad anxiety attacks that I haven't had

> before..thankfully the zanaxs help but I don't want to depend on

> stuff like that just to get through the day. GD is really sending

me

> to the grave it seems..if not physically, then mentally!

>

> Doctor told me last week that I would be on this roller coaster for

a

> long time..I don't know if I can do it! Even with the RAI..it will

be

> bad..and the meds don't seem to be working.

>

> Thanks for listening! I am just so tired and bummed out today, as I

> have been for a while now. I will post my results tomorrow, if I

get

> them.

>

> sarah

[Guest guest]

Wow !! You sound really really hypo.

Please dont wait until the 27th to get this squared away.

The anxiety attacks you refer to scare me a bit because at one point

I had gotten so hypo that my heart began to have major problems and I

had thought they were just anxiety attacks. I was actually

experiencing " Hypothyroid Heart " condition. Its a real condition

that is brought on my being hypothyroid....a very serious condition ~

do a search on it and read about it.

I too thought it was anxiety attacks ~ I felt horrible! Once my

thyroid levels raised the anxiety attacks went away.

You really need to get this under control now. On that dosage med ~

it sounds like your in the danger zone.

I pray this gets straightened out for you quickly.... Graves doesnt

need help to make a person feel awful but it sounds like your doc may

be trying to make things worse for you.

My thoughts & prayers are with you. Please keep us posted!

Hugs,

J