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Question about RSS

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Hello, I just signed up for this group and found the link in the

newsletter I received today from the magic foundation.

We are not sure if my son has RSS or not and it gets frustrating at

times trying to figure out why he is not growing well. He is 8

years old and was weighed at 46 lbs + a couple oz's and was 46

inches tall. My son has seen a few endo's two different

geneticists, a gastronlogist etc.. he has had every test they can

think of to rule out certain things and all tests have all come back

negative. The geneticist he seen a few years ago did not feel he

had RSS. I am so confused as to what my son has. Can anyone give

me some advice as to what I can do to try to find out if my son

really does have RSS or if he does not what is it he could have?

Thank you

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