Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I posted a pic of my son. The album is AJ. Let me know what you all think. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 , What a handsome guy! He looks a lot like my son, under Matt H, I think. Matt has a very thin face, too. But he is not RSS. I know as kids get older it is harder to distinguish as their heads get more in proportion to their bodies. I just wanted to make sure that AJ has had the stim test. I know there is some kind of simple blood test to look for markers of Growth HOrmone, the IGF's I think. But the stim test is a 6 hour test (if I remember right). He has to have fasted and then they put in a hep lock to draw blood from. Then they give him medicines to stimulate his pituitary to secrete growth hormone. Then they draw blood every hour or so to measure the amount of growth hormone he is secreting. Matt's is normal, but in SGA/RSS kids they need more than their body produces. SOme kids can qualify for Growth HOrmone without the stim test, but your son's birth measurements would be too big for that. The FDA just approved growth hormone use in short stature kids without any identifiable disease, but I have not heard the latest on insurance coverage for those kids. Anyway, just wanted to make sure you had the long stim test and not just a simple blood test. Beth > I posted a pic of my son. The album is AJ. > Let me know what you all think. > > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I am going to find out today from the Dr. if he had the stim test. - In RSS-Support , " millerkaitlyn " <BethHultquist@h...> wrote: > , > > What a handsome guy! He looks a lot like my son, under Matt H, I > think. Matt has a very thin face, too. But he is not RSS. I know > as kids get older it is harder to distinguish as their heads get more > in proportion to their bodies. > > I just wanted to make sure that AJ has had the stim test. I know > there is some kind of simple blood test to look for markers of Growth > HOrmone, the IGF's I think. But the stim test is a 6 hour test (if I > remember right). He has to have fasted and then they put in a hep > lock to draw blood from. Then they give him medicines to stimulate > his pituitary to secrete growth hormone. Then they draw blood every > hour or so to measure the amount of growth hormone he is secreting. > > Matt's is normal, but in SGA/RSS kids they need more than their body > produces. SOme kids can qualify for Growth HOrmone without the stim > test, but your son's birth measurements would be too big for that. > The FDA just approved growth hormone use in short stature kids > without any identifiable disease, but I have not heard the latest on > insurance coverage for those kids. > > > Anyway, just wanted to make sure you had the long stim test and not > just a simple blood test. > > Beth > > > > I posted a pic of my son. The album is AJ. > > Let me know what you all think. > > > > > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 , Are you sure you did not sneak into my house and take a picture of Max???? Wow! Your son looks amazingly like mine! Red hair, low ears, glasses.... I think Max's face is a little fuller, though. I was so shocked! Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Hi Jodi, The camera must of taken a bad shot my sons hair is actually a very light brown with some blond in it but when I looked at it the picture again it does look like his hair is red in it. Do you have a pic. up of your son and is he RSS? I would really like to see him so I can compare. Thanks > , > > Are you sure you did not sneak into my house and take a picture of > Max???? Wow! Your son looks amazingly like mine! Red hair, low > ears, glasses.... I think Max's face is a little fuller, though. I > was so shocked! > > Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 No, I have not posted a picture of Max in a long time. He was struggling with having his picture posted on the listserve for awhile, but I have not asked him lately. I'll try to remember to ask him tonight. It's hard with teens - they change their minds so often and have specific likes and dislikes. I'll let you know when and if he lets me post one. Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 hi denise!! what a handsome young man you have!!!! jodie (nicholas-6 nonrss, christopher-3 rss 24lbs 1.7oz 34 " periactin, ght genotropin(on hold until july),ADHD(possible),assmentry(left side 1cm), johnathon-1yr nonrss) > I posted a pic of my son. The album is AJ. > Let me know what you all think. > > > Thanks > Quote Link to comment Share on other sites More sharing options...
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