Diagnosed vs. Undiagnosed PPD

[Guest guest]

My 3 yr old son has undiagnosed PPD. He has been cf, yeast,

artificial ingredients, corn and wheat free from 18 months, and

gluten free for a year. He has responded very well from the diet, so

much so that my doctor thinks I am crazy. Yet, ds still has tummy

aches and loose stools, and hasn't gained weight in a year. The

doctor wants me to put ds back on gluten and dairy so he can get an

accurate diagnosis. Of course, I am unwilling to do this now.

My question is this: What are the benefits and drawbacks of ds being

diagnosed vs. not diagnosed. I know in DC, a friends kids went to an

excellent private school on the school systems tab because they could

not support the children's needs. So this would possibily be a

benifit, except that here in land, I think the public school has

programs for special needs children. Are there other benefits or

drawbacks?

[Guest guest]

> My 3 yr old son has undiagnosed PPD. He has been cf, yeast,

> artificial ingredients, corn and wheat free from 18 months, and

> gluten free for a year. He has responded very well from the diet, so

> much so that my doctor thinks I am crazy.

Merry -

I will let others address your question about the benefits of having/not

having a diagnosis, but I just wanted to let you know that we are sort

of in the same boat. I put my son on the diet at the age of 13 months.

He is now 28 months and definitely not on the spectrum. But I am

convinced that if I had not gotten him on the diet, and if I had not

stopped vaxxing him at 9 months, then he absolutely would be PDD. But

I've had 2 very good doctors check him out (Isabelle Rapin in NYC, and

Conlon at Childrens in DC - wonderful man, if you are looking

for a dev ped in DC) and both agree that he is not on the spectrum. But

I maintain that he was, or at least, he was headed that way. At this

point all he has is a slight expressive language delay (but he's

catching up quick) and sensory integration problems, which he gets

weekly therapy for (and is also improving on). So, language delay,

sensory integration problems, and intolerant to gluten, casein, and

rice? Sounds pretty much like PDD material to me......

But anyway, I feel that we have " cured " him, or at least, stopped the

potentially irreversible damage from occurring. I know, for the most

part, I am totally thrilled about the whole thing - he's not PDD! What

could I not be happy about?!?! But there is a tiny part of me saying

" but he is, you just managed to catch it really early, and now no one

believes you about what danger he was in. " It is very difficult I

think, I really feel like we were on the brink and I yanked him back

just in time, but drs. really don't take me too seriously about that. Oh

well, not too much to be done about it now, we just keep on course and

hope for the best. I will feel that we are totally out of the woods

once he turns 4, then we may try introducing some foods back in his diet

and see what happens (actually, he was soy/corn free for a year, and

then we were able to get him back on those, which is very nice). I hope

that in another 2 years we will know so much more, perhaps there will be

more help for all our kids, but particularly those that have what I

believe amounts to a metabolic problem, like my son and maybe yours.

So, probably not much help to you, but I just wanted to let you know

that we are in a very similar situation.

mom to Winona Jane (4), Caton (2, SID, expressive language

delay) and Aster Ann (1)