Feeling down,

[Guest guest]

Wow, so many s! Which one is yours? I would love to see him.

Jennie

mom to Lindsey-8

[Guest guest]

Hi all, I don't know if it is just all the talk about the convention

but I really feel left out latley!! I finally was able to put a

couple of pictures of on here, I also put one on here about

him being in the paper, I guess I am just down because I will post

and just seems like I never get a reply, this list serve has been my

gaurdian angel since I found out about and then getting to go

to the convention was Godsend!!!I just feel left out I guess,I know

every child on here has different problems... but I would like advice

or questions answered to!I feel like sometime's I don't belong

because doesn't have a G-Tube.. or hypoglycemia or... as sick

as some of the kids and I don't have answers to post about those

things but I have other questions or good days and well no reply, I

know it sounds like a pity party but I am just feeling down, I know

alot of you all helped me during the Growth Hormone and I appreciate

it, I just don't really feel as though I fit in? Well hugs to all

Mom to ..

[Guest guest]

Hi there ,

I think we have all felt like that at some point or other on here

but please know that we all care about you and !! I know

that I also don't post enough replies as of late being busy with the

end of the school year stuff for Olivia (switching schools) and

everything else has made it pretty hectic here. Do you have Yahoo

Messenger? I love to chat on there and it's nice to have a real

time conversation, my ID is leahdaf2000 , there are other RSS

parents who like to chat also.

I hope that all is going great with you guys and that the new GH

is still working well with no burning. I will have tons of GH

questions myself if we ever decide to go that route but for now

we're opting not to do it.

Can't wait to see you at the convention!!!

((Big Hugs))

Leah, mom to 9yrs and Olivia 4.5 yrs, RSS, OI, 19lbs, 33 "

> Hi all, I don't know if it is just all the talk about the

convention

> but I really feel left out latley!! I finally was able to put a

> couple of pictures of on here, I also put one on here

about

> him being in the paper, I guess I am just down because I will post

> and just seems like I never get a reply, this list serve has been

my

> gaurdian angel since I found out about and then getting to

go

> to the convention was Godsend!!!I just feel left out I guess,I

know

> every child on here has different problems... but I would like

advice

> or questions answered to!I feel like sometime's I don't belong

> because doesn't have a G-Tube.. or hypoglycemia or... as

sick

> as some of the kids and I don't have answers to post about those

> things but I have other questions or good days and well no reply,

I

> know it sounds like a pity party but I am just feeling down, I

know

> alot of you all helped me during the Growth Hormone and I

appreciate

> it, I just don't really feel as though I fit in? Well hugs to

all

> Mom to ..

[Guest guest]

Hi -

I just wanted to let you know that I know how you feel. I often feel

the same way because I don't know all of the " lingo " and he doesn't

have hypoglocemia (that I know of) or a gtube either. I have been

feeling down all week because at our last weight check the doc told

us that Isaac's weight gain has slowed down in velocity. Last week

he was 1/2 a pound lighter than what he should be. Every check

since he has been born has been good so this was the first " bad " one.

I cried all the way home from the pediatrician's office because I

felt responsible. I kept playing the " ohmygosh " game. Ohmygosh..he

is going to end up with a g-tube and ohmygosh..what if he starts

loosing weight..All of this is still so new to me and since we don't

know anyone else with kids I really don't know what " normal " is.

Anyway, I just wanted you to know that I can empathize with your

feelings..hang in there!

God Bless you and your family!

Mimi (mom to Isaac)

[Guest guest]

Hey ,

Don't feel left out. My daughter is mild, and isn't even on GH. Also we are not

going to the convention. I can't afford to take the time off from work. So we

can stay here and talk about them while they're gone (LOL) Or just share the

experience of dealing with mild RSS. Like, what kind of step stool does your

child have?

Feeling down,

Hi all, I don't know if it is just all the talk about the convention

but I really feel left out latley!! I finally was able to put a

couple of pictures of on here, I also put one on here about

him being in the paper, I guess I am just down because I will post

and just seems like I never get a reply, this list serve has been my

gaurdian angel since I found out about and then getting to go

to the convention was Godsend!!!I just feel left out I guess,I know

every child on here has different problems... but I would like advice

or questions answered to!I feel like sometime's I don't belong

because doesn't have a G-Tube.. or hypoglycemia or... as sick

as some of the kids and I don't have answers to post about those

things but I have other questions or good days and well no reply, I

know it sounds like a pity party but I am just feeling down, I know

alot of you all helped me during the Growth Hormone and I appreciate

it, I just don't really feel as though I fit in? Well hugs to all

Mom to ..

[Guest guest]

That was so nice.. we definitley will talk !! I love this group but

I am also stressd out with other issues sensory, ocd,odd (he just got

kicked out of pre-school(kindercamp TODAY) and daycare when he was

4.UGH He is having to have another hypospadias surgery and well I

don't think he is going to want to be back in diapers at 5 !! So I

guess it is all differeent some have the gh or feeding which I went

through but I just guess it is overwhelming when you don't have

anyone to talk to about these other issues! Ha Ha I like that

question!! Mine doesn't use a stool anymore, lol he is so wild he

climbs and also uses a backscatcher for turning on light

switches he is so funny he will climb on the potty and jump up

to the sink and just sit on his knees or W position and brushes his

teeth and hair!! He is fun to watch and I just take in all the neat

ways he comes up with doing things , you got any? Talk to you

soon!!

> Hey ,

> Don't feel left out. My daughter is mild, and isn't even on GH.

Also we are not going to the convention. I can't afford to take the

time off from work. So we can stay here and talk about them while

they're gone (LOL) Or just share the experience of dealing with mild

RSS. Like, what kind of step stool does your child have?

>

> Feeling down,

>

>

> Hi all, I don't know if it is just all the talk about the

convention

> but I really feel left out latley!! I finally was able to put a

> couple of pictures of on here, I also put one on here

about

> him being in the paper, I guess I am just down because I will

post

> and just seems like I never get a reply, this list serve has been

my

> gaurdian angel since I found out about and then getting

to go

> to the convention was Godsend!!!I just feel left out I guess,I

know

> every child on here has different problems... but I would like

advice

> or questions answered to!I feel like sometime's I don't belong

> because doesn't have a G-Tube.. or hypoglycemia or... as

sick

> as some of the kids and I don't have answers to post about those

> things but I have other questions or good days and well no reply,

I

> know it sounds like a pity party but I am just feeling down, I

know

> alot of you all helped me during the Growth Hormone and I

appreciate

> it, I just don't really feel as though I fit in? Well hugs to

all

> Mom to ..

>

>

>

[Guest guest]

I don't reply to anything very often....but I am on yahoo messenger almost

daily. If anyone wants to chat, vent, or whatever my ID is PanthersKitten26.

Mommy to Keigan (RSS 4-15-03) and Tristian (non-RSS 9-26-01)