TED Elaine

[Guest guest]

Did anyone have or heard about a biopsy of the eye to see if TED is still

active? The eye surgeon is trying to get me into a study program so he can

get an ocular scan and biopsy done on my eye. I am scare about this biopsy

since I don't know anything about it. He wants these done before he starts

treatment on my eyes. Its been a year since I saw him and my TED is still in

the lower stage of the scale. He is calling for radiation but I don't care

for it.

[Guest guest]

Hi,

I'm not familiar with the study, but it's certainly not necessary to see if

you have active thyroid eye disease. Medical studies and clinical trials can

be wonderful opportunities, but if you have insurance to cover your eye

condition, I'm not sure what the benefits are to you.

Steroids and orbital radiotherapy are both used to reduce inflammation in

congestive GO, but if they're needed it shouldn't be on the basis of these

results. Best, Elaine

[Guest guest]

In a message dated 5/14/2003 2:51:07 PM Central Daylight Time,

daisyelaine@... writes:

> Steroids and orbital radiotherapy are both used to reduce inflammation in

> congestive GO,

Are there any other options? Orbital radiotheraphy worries me. I haven't

read many good things about the efficacy of the treatment. I'm just hoping

the current prednisone works.

Terri

Graves disease 1979; treated with RAI; exothalmia 1982, treated with IV

steroids; since then on unithroid. New flare up of TED with severe double

vision, swelling in intraocular muscles and inflammation in August of 2002.

Currently hypoactive. Treating TED with prednisone. If doesn't work,

considering other options (surgical).