No sacred (casein-free) cows, or we don't go forward...

[Guest guest]

Hi everyone,

Most of you don't know me well, but I've been reading this list for over

four years, and occasionally posting when I had a tip or trick that I

thought would help. We've been gfcf twice, for several months each time,

but neither time found much benefit there, although AAL testing indicates

high IAG and some gliadomorphins. And, frankly, after those careful

trials, I decided it was a change to our lifestyle I wasn't willing to keep

'experimenting' with, due to the crimp it puts in my son participating in

social events and in my ability to give all three of my children what they

need from me (no flames please). I may continue to read this group for

general information, if it can bring itself back to being a pleasant

'community' again. I do however, still believe in the opioid/leaky gut

theory, and believe that there may be some other related solution for my

son. I am very interested in enzymes, and whatever other bright ideas that

might lead this way.

The recent firestorm on this list bothers me, though. I worry that this

list community has a very fixed position, an opinion that the diet is the

answer to everything. If the community on this list gets stuck in this

position, my worry is that there will be no room for any other ideas or

answers to occur, and that many people who might help and contribute will

consider their participation so unwelcome as to go elsewhere. Anytime

there are 'sacred cows', or topics that cannot be objectively discussed,

free inquiry is stifled. Please consider that this free inquiry is the

gift of these internet lists, where so many of us get to share our thoughts

with each other, and that to lose it in this gfcfkids 'community' would be

a terrible thing. Certainly, I believe that the diet has helped many

children, some in absolutely tremendous ways, others to a lesser

extent. Then there are kids like my son, for whom it does not seem like

the answer, for whatever reasons, which must be accepted, too. This is my

entreaty to you to work to create a space on this list for differing

opinions. There's only so much that can be accomplished from preaching to

the choir.

Thanks for letting me have this say.

Terri in Santa Cruz

mom to Zane, almost 8yo high functioning autistic

Boldly standing for the possibility of a cure for autism

[Guest guest]

>>>> I worry that this list community has a very fixed position, an

opinion that the diet is the answer to everything. Terri in Santa

Cruz>>>>

Terri,

I have been reading this list since January and have found it very

informative in many alternative therapies. I have expanded my knowledge

base in areas I had never dreamed existed and without this list may never

have learned of them. I have never felt this was a one-way-does-all list.

I do not know how I could have survived living with my son without this

generous group of folks.

Ever thankful for GFCFKids,

Sharon in Virginia

[Guest guest]

I agree with the opinion that the more information I get, the better able

I am to help my sons. I also don't have very much time to spend perusing

the Net for other websites and have come to depend on this site for most

of the information I have on the GFCF diet and other treatment options as

well. I don't feel pressured to try anything I don't want to, but

appreciate learning from all the other parents out there doing everything

they possibly can to cure their children of this awful disorder.

( & Malachi's mom)