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Re: update on Datreon

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Hi there le,

I'm so happy that Datreon is doing so well! Olivia also " crawled "

this way for many months until she got the hang of keeping her head

up off of the floor and weight bearing on her arms! Like Pat, we

called it bulldozing too! It's just too cute!!

Take care,

Leah, mom to Ash 9 and Olivia 4.5yrs, RSS, OI, 19.5lbs, 33 "

> Hi everyone, it's been a while since I've posted, but I wanted to

let

> everyone know that Datreon's surgery went well, he lost 5 oz, but

he's working on it.

> He was also officially " diagnosed " with RSS by his geneticist. And

he was

> also put on periactin. Overall, everything is going great. He also

started

> crawling!!! It's so cute, he does it on his head and feet, diid

anyone else's child

> crawl like this? Can't wait to see everyone at the convention!

> le-mom to Datreon 11lb 10oz, periactin

>

>

>

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Hi le-

So glad to here Datreon's surgery went well. is crawling the same way now

- she doesn't go too fast (which we are grateful for!); but she gets to anything

she wants in the room. Yeh, I agree with everyone else that it is cute! Can't

wait to see you at the convention. Jane - mom to - 12lb 7oz now - YEH

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le,

I am so glad to hear that Datreon is doing well after his surgery.

Way to go! Congrats on the crawling thing! I just had to respond

thpough, because I chuckled when I read HOW he crawls/ did

the SAME exact thing. Scooted on his head by pushing around with his

feet. He did this for the longest time. But, eventually, he did get

the right crawling technique down. But, it was a great thing for

him, because he was finally mobile! :o) I am glad isn't the

only one that did this! :o) I hope Datreon continues to do well.

Take care,

Jodi R.

> Hi everyone, it's been a while since I've posted, but I wanted to

let

> everyone know that Datreon's surgery went well, he lost 5 oz, but

he's working on it.

> He was also officially " diagnosed " with RSS by his geneticist. And

he was

> also put on periactin. Overall, everything is going great. He also

started

> crawling!!! It's so cute, he does it on his head and feet, diid

anyone else's child

> crawl like this? Can't wait to see everyone at the convention!

> le-mom to Datreon 11lb 10oz, periactin

>

>

>

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Interestingly, achon babies often crawl this way for the same reason,

big, heavy head and small body. Kim did not crawl this way but

during her toddling time, if she got tired, she would walk with her

head on the floor. That sure looked funny and the scuff marks on her

forhead were a bit odd, too!

Conny, mom to Kim, 28 yr old achon and great-aunt to , SGA

> > Hi everyone, it's been a while since I've posted, but I wanted to

> let

> > everyone know that Datreon's surgery went well, he lost 5 oz, but

> he's working on it.

> > He was also officially " diagnosed " with RSS by his geneticist.

And

> he was

> > also put on periactin. Overall, everything is going great. He

also

> started

> > crawling!!! It's so cute, he does it on his head and feet, diid

> anyone else's child

> > crawl like this? Can't wait to see everyone at the convention!

> > le-mom to Datreon 11lb 10oz, periactin

> >

> >

> >

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  • 2 weeks later...
Guest guest

Hi le. About the crawling - My little guy did the same thing -

and he still " loves " his head!! He loves to put his head down as if

he is going to do a somersault - so, of course, we help him over.

Gymanistics seems to be in his future! Glad to know Datreon's

surgery went well.

-

> > Hi everyone, it's been a while since I've posted, but I wanted to

> let

> > everyone know that Datreon's surgery went well, he lost 5 oz, but

> he's working on it.

> > He was also officially " diagnosed " with RSS by his geneticist.

And

> he was

> > also put on periactin. Overall, everything is going great. He

also

> started

> > crawling!!! It's so cute, he does it on his head and feet, diid

> anyone else's child

> > crawl like this? Can't wait to see everyone at the convention!

> > le-mom to Datreon 11lb 10oz, periactin

> >

> >

> >

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