Sharon~

[Guest guest]

Sharon,

I am sorry if I am bearing too much weight on you. I was simply

trying to show my appreciation for the support and information you,

and the other RSS adults give to the rest of us. We are parnets of

RSS children. I don't know about the rest of them, but I know I

often have wondered what 's life would be like as an adult. I

struggle daily with the whole non feeding issue, and trying to make

his life as easy as possible while he tries to get around with a tube

attatched to his belly and an IV pole hovering over his head. It gets

to be hard to do this daily, and not wonder when he will ever be tube

free, and if he will ever eat on his own. It may be a long time

before is tube free, but knowing you all are doing fine makes

me feel that one day he will be able to do so much more than I could

ever imagine. I always give the benefit of the doubt, and I

always try to be that support and encourager for him, because I will

never give up on him. I will always tell him he can do it! You

guys help me to see that things are going to be okay for him. And,

if that is putting you on a high pedestal, I am sorry. I am not

trying to hold you to some high standard. I just wanted to thank you

for showing me that things are really going to be okay for my

precious little boy. Just wanted to tell you that I appreciate your

input.

Jodi R.