help needed in defending the diet - long

[Guest guest]

Dear Friends,

A year ago my daughter, now 3 and a half, was not saying one

word. She was not making eye contact and sometimes wouldn't respond

when we called her. She had mild hand flapping and toe walking and

tested poorly in many areas and was diagnosed autistic.

One year later everyone thinks she is normal. She talks normally

she hugs, she makes eye contact, she even hugged her sister when

her sister was crying the other day. I am so grateful to the diet,

and God and all the help that is freely available these days!

The main things we did were to eliminate casein, gluten, do

a yeast diet, take a short course of nystatin, and then eliminate

everything that seemed to make her worse which was a lot: corn, soy,

fruit and many vitamins. I also did DMG for a long time. And she got

1 hour of speech 2X a week and 1 hour of OT once a week for 9 months

or so.

I don't know exactly what her father (we are divorcing) is

thinking, but he has never admitted that she was autistic and is

trying now to interfere with her regimen. I just got off the phone

with " his " nutritionist who said needs to eat corn and other

grains and fruit and vitamins, etc, etc. She said standard allergy

tests produce more false positives than negatives and most people

are really only allergic to one or two things!!!

What I need, desperately, is any data I can use to support my

position, which is:

- some (many?) autistic kids react to more than just gluten and

casein

- quite a few autistic kids have reactions to vitamins

- if a child does have reactions to vitamins/foods then eating that

food does more harm than good.

I am looking for your experiences, articles, and doctors or other

professionals who might be able to speak to these issues. I have

been to several " alternative " doctors that did not work out and

am very very frustrated/tired of searching.

Obviously we can't go on forever avoiding all these foods plus having

trouble with vitamins (she is ok with C, Calcium, and Zinc). We must

figure out what is the root cause of the problem and fix it. That is

easier said than done!

But I cannot stand by and watch her regress when he has her because

he fed her Tums for calcium (with corn starch) or Flintstones. This

is a very difficult thing to defend and any help would be very very

much appreciated.

Thanks,

Booth, PhD

booth@...

PS. I have gone on the diet with her, at first 100%, and found that

I react the same way she does. Her older sister has many food

allergies that caused her screaming and personality changes, and

rashes, and many other overt symptoms. So I have some reason to

believe and I could be allergic to so many things. With

everything we have eliminated (except gluten and casein) we have

tried the food/vitamin several times after a period without and

reproduced the original symptoms. We have also had skin tests that

show we are allergic to a number of foods and tons of inhalants.

I did not do this lightly. I still eat mostly what eats, but

I do cheat on some things, to my detriment.

[Guest guest]

,

My son sees an allergist-immunologist for official medical

paperwork. The guy is not a DAN doctor, but he knows that there is

an incredible increase in allgeries & immune dysfunction and has many

clients with multiple chemical sensitivity, CFS, and FMS. He has

written letters for my ex and the school about Ian's dietary

restrictions and necessary supplements based upon the tests he has

run. Those letters have helped immensely - people are now on notice

of a medical condition.

Also, I recently posted to this list a study in the Journal of

Allergies and Clinical Immunology (March issue) about the intestinal

damage and food intolerances of ASD children. Yes, our diet is going

mainstream! If you don't find it in archives, email me privately &

I'll find it for you.

> Dear Friends,

> A year ago my daughter, now 3 and a half, was not saying one

> word. She was not making eye contact and sometimes wouldn't respond

> when we called her. She had mild hand flapping and toe walking and

> tested poorly in many areas and was diagnosed autistic.

> One year later everyone thinks she is normal.... What I need,

desperately, is any data I can use to support my position, which is:

> - some (many?) autistic kids react to more than just gluten and

> casein

- quite a few autistic kids have reactions to vitamins

- if a child does have reactions to vitamins/foods then eating that

> food does more harm than good.

>

> I am looking for your experiences, articles, and doctors or other

> professionals who might be able to speak to these issues. I have

> been to several " alternative " doctors that did not work out and

> am very very frustrated/tired of searching....

[Guest guest]

I know there are others out there with good info on supporting diet. Just a

suggestion that you might use a video camera to record to record your

daughter on good days. Obviously, you don't want to plan in infringement,

but when there is one, pull out the camera with the same tape so you can

contrast the behaviors side-by-side.

April in SE Pa