Re: Now I'm confused--weight gain, when to start GH

[Guest guest]

-

I just went to the CDC website and charted . This isn't exact,

but it looks like yes, he is between the 3rd/10th percentile (let's

say 8th percentile) for BOTH height and weight. So then I went to

the weight for height chart, and he is at almost exactly the 10%

percentile for weight-for-height.

So he is thin.

But the good news is that he is ON the growth charts for height (the

vast majority of RSS kids are no where near it). Are you and your

husband very tall???

Based on his height being on the charts already, albeit at the 8th

percentile, and that is only 3 yrs 3 months, don't panic that

you aren't starting growth hormone.

And the nutritionist is probably correct, that getting him to put on

a lot of weight without his height increasing might not be good.

However, even the 10th percentile is still pretty low, he would

still be considered quite thin if he gained 1-2 pounds and rose to

the 25th percentile (weight for height, remember that it is a

DIFFERENT chart than jsut weight or just height).

So with canola oil, peptamen jr, cheese, etc. that we have talked

about before on here, especially making one high calorie milk shake

a day, you could probably get that extra pound on him.

But he is doing pretty well!!!

> Well, last year at the convention Dr. H told us to wait until

's

> wt/ht percentile was between 10 and 25% for at least 6 months

before

> starting gh. So we came home with that information and relayed it

to our

> local endo who knows Dr. H and understands her expertise with RSS.

So at

> 's recent visit with our endo he was weighed and measured and

still

> not up to enough weight, plus because his growth velocity is 8%

she said

> that he is still growing enough on his own that we could wait

until it

> goes below 5%. She told us to increase his calorie intake and try

to put

> on the weight. Taking that into consideration, we had a visit with

a new

> nutritionist and explained our goals with 's weight. She

measured

> his arm circumferences and did a fat caliper test. We also

provided her

> with a food log with three days worth of 's consumption...and

I mean

> to the T, every bite. So as she analyzed all of this her

conclusion is

> that is getting more than enough calories for his age/weight

and

> that any weight that we pack onto him is going to be pure fat. He

is

> only going to chunk up, not really build muscle until he starts the

> gh--apparently that is when his body composition will change. So

she

> offered no nutritional " fix " for what we need to do. She didn't

see much

> more room for adding calories to his intake besides what we

already do.

> Plus she cautioned that we are setting him up for poor eating

habits as

> an older child.

>

> So how do we get this kid to gain weight so he can go on the gh so

he

> can begin adding more muscle not just fat? I think his ht/wt

percentile

> right now is below 0%. He looks okay to me, just proportionately

small.

> He doesn't have too much fat on him, but you can pinch a little at

his

> belly, arms and legs, so it's there. Compared to other kids his

age they

> just look thicker, but I think alot of that is muscle mass that

> doesn't have. So should I be worried about trying to pack on the

extra

> fat or does really need that fat there to help him keep up

with the

> gh? A side note would be this... recently had his cholesterol

> checked and it was 225 (not a fasting test) so of course that

bothers

> me. It seems that no matter which way we go something always goes

out of

> balance.

>

> , 's mom (RSS, 3 yr, 3 mo., 26 lbs, 36 " , Zantac,

Periactin, and

> quite a good singer!)

>

>

>

[Guest guest]

,

Thank you for your input, it means alot as I know you REALLY know what

you're talking about. I began adding instant breakfast or scandishake to

his milk (one pouch per day) a few weeks ago and this has helped.

Actually, he put on one pound in two weeks just by supplementing and is

now why he is 26 lbs--he was 25 lbs at the time of his endo visit. I

worry about him gaining weight too quickly and throwing something else

out of balance. So, I will not panic, I will stay the course and keep on

doing what I'm doing and hopefully we'll see more results. Thanks

again!!

, 's mom

Re: Now I'm confused--weight gain, when to start

GH

-

I just went to the CDC website and charted . This isn't exact,

but it looks like yes, he is between the 3rd/10th percentile (let's

say 8th percentile) for BOTH height and weight. So then I went to

the weight for height chart, and he is at almost exactly the 10%

percentile for weight-for-height.

So he is thin.

But the good news is that he is ON the growth charts for height (the

vast majority of RSS kids are no where near it). Are you and your

husband very tall???

Based on his height being on the charts already, albeit at the 8th

percentile, and that is only 3 yrs 3 months, don't panic that

you aren't starting growth hormone.

And the nutritionist is probably correct, that getting him to put on

a lot of weight without his height increasing might not be good.

However, even the 10th percentile is still pretty low, he would

still be considered quite thin if he gained 1-2 pounds and rose to

the 25th percentile (weight for height, remember that it is a

DIFFERENT chart than jsut weight or just height).

So with canola oil, peptamen jr, cheese, etc. that we have talked

about before on here, especially making one high calorie milk shake

a day, you could probably get that extra pound on him.

But he is doing pretty well!!!

> Well, last year at the convention Dr. H told us to wait until

's

> wt/ht percentile was between 10 and 25% for at least 6 months

before

> starting gh. So we came home with that information and relayed it

to our

> local endo who knows Dr. H and understands her expertise with RSS.

So at

> 's recent visit with our endo he was weighed and measured and

still

> not up to enough weight, plus because his growth velocity is 8%

she said

> that he is still growing enough on his own that we could wait

until it

> goes below 5%. She told us to increase his calorie intake and try

to put

> on the weight. Taking that into consideration, we had a visit with

a new

> nutritionist and explained our goals with 's weight. She

measured

> his arm circumferences and did a fat caliper test. We also

provided her

> with a food log with three days worth of 's consumption...and

I mean

> to the T, every bite. So as she analyzed all of this her

conclusion is

> that is getting more than enough calories for his age/weight

and

> that any weight that we pack onto him is going to be pure fat. He

is

> only going to chunk up, not really build muscle until he starts the

> gh--apparently that is when his body composition will change. So

she

> offered no nutritional " fix " for what we need to do. She didn't

see much

> more room for adding calories to his intake besides what we

already do.

> Plus she cautioned that we are setting him up for poor eating

habits as

> an older child.

>

> So how do we get this kid to gain weight so he can go on the gh so

he

> can begin adding more muscle not just fat? I think his ht/wt

percentile

> right now is below 0%. He looks okay to me, just proportionately

small.

> He doesn't have too much fat on him, but you can pinch a little at

his

> belly, arms and legs, so it's there. Compared to other kids his

age they

> just look thicker, but I think alot of that is muscle mass that

> doesn't have. So should I be worried about trying to pack on the

extra

> fat or does really need that fat there to help him keep up

with the

> gh? A side note would be this... recently had his cholesterol

> checked and it was 225 (not a fasting test) so of course that

bothers

> me. It seems that no matter which way we go something always goes

out of

> balance.

>

> , 's mom (RSS, 3 yr, 3 mo., 26 lbs, 36 " , Zantac,

Periactin, and

> quite a good singer!)

>

>

>