This Is Really Happening!!!

[Guest guest]

Well we got our Passports in the mail yesterday (2 weeks

early!!). This is the last big thing needed to go to the

convention!! I'm just so excited and it's only 3 weeks away!!

Everything seems to have gone so fast since we've been so busy with

everything. Our fundraising has been a huge success, in total we've

raised almost $12,ooo.oo and my girl friend who owns a salon in town

is still going to host a cut-a-thon for Olivia. I told her that we

have the funds to go to Chicago and to cover costs for all of

Olivia's appts. in Edmonton but she still wanted to do it! Now that

we're starting the Pamidronate IV meds for her Osteo we've just

added about 10 more appts per year. What a wonderful outpouring

we've had from our community, we are very humbled by it.

I can't wait to meet all of you in Chicago and take tons of pics!

Speaking of pictures I talked to the reporter who's done the

newspaper stories on Olivia and she wants to do a follow up after

the convention but she said if I wanted to publish pictures of

Olivia with other kids I'd need the parents to sign a release of the

photos, just on a plain piece of paper will do.... will anyone have

any objections? Anyway I'll be the crazy looking lady running

around with camera and paper in hand, lol!!

Have a great day everyone!

Leah, mom to 9yrs and Olivia 4.5yrs, RSS, OI, 19.5lbs (she's

gained again!!!!!!), 33 " , lactulose, senokot, zantac, tums

[Guest guest]

hey leah!!

that is so great!!! icant wait to see you guys in person!! our

newspaper wants to do the same thing so you can count me in!!!!

there will be 2 crazy ladies running around with a paper and

camera!!!!

jodie

>

> Well we got our Passports in the mail yesterday (2 weeks

> early!!). This is the last big thing needed to go to the

> convention!! I'm just so excited and it's only 3 weeks away!!

> Everything seems to have gone so fast since we've been so busy

with

> everything. Our fundraising has been a huge success, in total

we've

> raised almost $12,ooo.oo and my girl friend who owns a salon in

town

> is still going to host a cut-a-thon for Olivia. I told her that

we

> have the funds to go to Chicago and to cover costs for all of

> Olivia's appts. in Edmonton but she still wanted to do it! Now

that

> we're starting the Pamidronate IV meds for her Osteo we've just

> added about 10 more appts per year. What a wonderful outpouring

> we've had from our community, we are very humbled by it.

>

> I can't wait to meet all of you in Chicago and take tons of

pics!

> Speaking of pictures I talked to the reporter who's done the

> newspaper stories on Olivia and she wants to do a follow up after

> the convention but she said if I wanted to publish pictures of

> Olivia with other kids I'd need the parents to sign a release of

the

> photos, just on a plain piece of paper will do.... will anyone

have

> any objections? Anyway I'll be the crazy looking lady running

> around with camera and paper in hand, lol!!

>

> Have a great day everyone!

>

> Leah, mom to 9yrs and Olivia 4.5yrs, RSS, OI, 19.5lbs

(she's

> gained again!!!!!!), 33 " , lactulose, senokot, zantac, tums