Re: One special doctor!

[Guest guest]

Hey Jodi,

I have to say that I totally agree with you. We owe the that we have

today, to Dr H.

We first went to visit her in Sept 2002. was 8.5 months of age, and

weighed only 8#! Feeding him was almost impossible, and we were at the end

of our ropes with the Drs here at home.

I will never forget the first thing she said to us. She walked into the exam

room, took one very short look at , proclaimed that the Drs here at

home had it all wrong, and told us that she knew what needed to be done. I

think my jaw must have hit the floor, because she turned to me, and told me

not to worry, that she would do all the tests that were needed to prove that

she was right! LOL

When we first got home from NY, had several severe set-backs, but Dr

H never gave up, and has always been there for us. She has never failed to

come up with the right answer for whatever problem we're having at the time,

and her advice and support have always been right on the mark. Without her,

I truly doubt that we would still have with us, let alone thriving.

For anyone that isn't familiar with (I haven't been able to post too

often lately) his pictures are under Lee. He's doing so well, that

last year at the convention, I had numerous people coming up to me and

asking if we were " sure " that even had RSS! I fielded the question

so often, that I finally asked Dr H if she was sure! LOL Of course, she said

that she was very very sure, and that I shouldn't doubt it for one second.

Dr H is truly " one-of-a-kind " ! As Jodi said, she may not always say things

as tactfully as we would wish, but she works miracles with our kids! One of

the things that I appreciate most about her, is that she tells it like it

is. No pussy-footing around. And even when I've bulked at what she's telling

me, when I've taken the time to think about it, she's been right every time.

Sorry this is so long, but Dr H really is a special person, and I thank her

everyday for my g-son!

Pat (g-ma to , RSS, 30 months, 21.4#, 30.6 " , Prevacid, Zantac,

Singulair, Benadryll, Miralax, GTube. Pulmicort, Zopenex)

[Guest guest]

For those going to the convention -- you will all receive this info

in my letter coming next week. But for the first year ever, we are

going to " secretly " ask for a donation from each family, so that we

can get Dr. H a thank you gift at the end. Suggested $5 per family,

but any amount accepted of course. For those families who are

regular NY patients and whose child is on GH or being tracked for

it, our insurance companies are billed for the visit -- this way she

can prove that she followed our children quarterly (one of those

strange requirements for many ins companies with GH). So I

understand if you would rather not contribute.

I am working with Dr. H's amazing husband to come up with a scuba-

themed gift. She and her husband love scuba diving.

> You all,

> I have to reiterate what Salem said about saying " THANK

YOU "

> to Dr. H. It is amazing how awesome she is and how much time she

> gives to help our kids. I have had about a daily email

> correspondence with her for the last month or so and she has

helped

> us refine and fine tune what we are doing with right now.

She

> is so great, and she deserves for all of us to recognize that. I

> wish we could do something special for her, to let her know how

> important she is to us and how much we appreciate her. For those

of

> you that haven't met her yet, she is truly one of a kind! I have

> said it before, I think my should be a poster child for her

to

> show just how amazing she is and what great things she does for

and

> with our kids. He went from a 10 lb. 10 oz. 18 month old that was

> sickly, fraile, and terribly thin looking, that could not even

hold

> up his own head really, and barely sitting with support, to a

healthy

> and very happy 19 lb 2 year old! He is walking and talking with

the

> best of us! Plus, I know she has had a lot of stress from her

move

> and all, and just a little something from us would really reach

out

> and tell her that we appreciate all she does. A thank you is the

> least we could do for her! )

>

> Okay, I'm off my soap box now. But, if I could just express to

you

> how mad and frustrated I was at her in New York, and then saying I

> was done with her because she set my child back to seeing him gain

7

> ounces two weeks in a row right after we got home and having to

eat

> my words! And, the improvements just snowballed from there! She

may

> not have the best way with us parents, but boy does she have a

life

> lasting effect on our kids!!! Okay, DONE! )

>

> Jodi R.

> , RSS 2 years old, 19 lbs, 28 " (Dr. H's living, walking,

> healthy testament)

[Guest guest]

,

You mentioned, for families who are NY patients and whose child is on GH or

being

tracked for it, the insurance companies are billed for the visit to

prove that Dr. H followed the children. Does this apply to all patients who

have ever

seen Dr. H in NY? We saw Dr. H for the first time last year at the convention

and then saw

her again in December in NY. is followed regularly though by a local

endocrinologist. If my insurance is going to be billed, I need to now in

advance, because

I have an HMO that won't pay.

Kim C.

> > You all,

> > I have to reiterate what Salem said about saying " THANK

> YOU "

> > to Dr. H. It is amazing how awesome she is and how much time she

> > gives to help our kids. I have had about a daily email

> > correspondence with her for the last month or so and she has

> helped

> > us refine and fine tune what we are doing with right now.

> She

> > is so great, and she deserves for all of us to recognize that. I

> > wish we could do something special for her, to let her know how

> > important she is to us and how much we appreciate her. For those

> of

> > you that haven't met her yet, she is truly one of a kind! I have

> > said it before, I think my should be a poster child for her

> to

> > show just how amazing she is and what great things she does for

> and

> > with our kids. He went from a 10 lb. 10 oz. 18 month old that was

> > sickly, fraile, and terribly thin looking, that could not even

> hold

> > up his own head really, and barely sitting with support, to a

> healthy

> > and very happy 19 lb 2 year old! He is walking and talking with

> the

> > best of us! Plus, I know she has had a lot of stress from her

> move

> > and all, and just a little something from us would really reach

> out

> > and tell her that we appreciate all she does. A thank you is the

> > least we could do for her! )

> >

> > Okay, I'm off my soap box now. But, if I could just express to

> you

> > how mad and frustrated I was at her in New York, and then saying I

> > was done with her because she set my child back to seeing him gain

> 7

> > ounces two weeks in a row right after we got home and having to

> eat

> > my words! And, the improvements just snowballed from there! She

> may

> > not have the best way with us parents, but boy does she have a

> life

> > lasting effect on our kids!!! Okay, DONE! )

> >

> > Jodi R.

> > , RSS 2 years old, 19 lbs, 28 " (Dr. H's living, walking,

> > healthy testament)

[Guest guest]

If you have an HMO that won't pay, just remember to tell us when you

check in. I don't know how it works, but we'll tell Dr. H. I know

she has to bill some patients like because of the GH

treatment. I also know that she has written off the part that

insurance doesn't cover, for the convention visits. Now, I have

never asked her this, but I am guessing that since she has to take 5

days off from her practice, if she is able to show some billable

hours, it is less pressure from the up-aboves. But I also know that

for a child that wants to go on GH, the medical records/insurance

company has to see that the endo has followed the child at least

twice in a 6-month period, usually before GH is allowed to be

covered. And once you are on GH, then you have the monitoring

stage, and any re-dosing every 3 months for weight changes, etc.

> > > You all,

> > > I have to reiterate what Salem said about

saying " THANK

> > YOU "

> > > to Dr. H. It is amazing how awesome she is and how much time

she

> > > gives to help our kids. I have had about a daily email

> > > correspondence with her for the last month or so and she has

> > helped

> > > us refine and fine tune what we are doing with right

now.

> > She

> > > is so great, and she deserves for all of us to recognize

that. I

> > > wish we could do something special for her, to let her know

how

> > > important she is to us and how much we appreciate her. For

those

> > of

> > > you that haven't met her yet, she is truly one of a kind! I

have

> > > said it before, I think my should be a poster child for

her

> > to

> > > show just how amazing she is and what great things she does

for

> > and

> > > with our kids. He went from a 10 lb. 10 oz. 18 month old that

was

> > > sickly, fraile, and terribly thin looking, that could not even

> > hold

> > > up his own head really, and barely sitting with support, to a

> > healthy

> > > and very happy 19 lb 2 year old! He is walking and talking

with

> > the

> > > best of us! Plus, I know she has had a lot of stress from her

> > move

> > > and all, and just a little something from us would really

reach

> > out

> > > and tell her that we appreciate all she does. A thank you is

the

> > > least we could do for her! )

> > >

> > > Okay, I'm off my soap box now. But, if I could just express

to

> > you

> > > how mad and frustrated I was at her in New York, and then

saying I

> > > was done with her because she set my child back to seeing him

gain

> > 7

> > > ounces two weeks in a row right after we got home and having

to

> > eat

> > > my words! And, the improvements just snowballed from there!

She

> > may

> > > not have the best way with us parents, but boy does she have a

> > life

> > > lasting effect on our kids!!! Okay, DONE! )

> > >

> > > Jodi R.

> > > , RSS 2 years old, 19 lbs, 28 " (Dr. H's living, walking,

> > > healthy testament)