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Re: To K

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Just for the record I wasn't offended, just pointing out that for some of us

those suggestions amount to only part of what we do daily just to make ends

meet. My pocket change often ends up in my gas tank by the end of the month, but

again, I think that even I, over time can manage to find 30.00

To K

,

I don't think you offended anyone with your messages. I took them

as heartfelt and as offering some ideas for those who are having

difficulty financially. I also think you opened up a topic that we

don't talk about often due to pride, embarassment, privacy, etc.

But as a support group we need to talk about these things and share

ideas.

You are correct: Many people belong to this listserve and think

they are getting all the info they need. Magic offers so much more

and unless we talk about it, people may not know that. Just off the

top of my head I can think of: the newsletter, the medical

articles, the protocols from Dr. H. regarding treatment for sick

kids, the convention, and even the RSS/SGA book that and

Katy are working on for the doctors. I know there is more, but I

think you know what I mean.

Anyway, don't think that you offended, please. At least I don't

think you did. As I said, I think you brought up a topic that needs

to be discussed.

Jodi Z.

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-Dear ,

Thanks for the feelings of unity. I love your email address BTW.

If life did not have coffee, I would never get out of bed. Hah!

-- In RSS-Support , " Christensen "

<zzzentude@c...> wrote:

> Just for the record I wasn't offended, just pointing out that for

some of us those suggestions amount to only part of what we do daily

just to make ends meet. My pocket change often ends up in my gas

tank by the end of the month, but again, I think that even I, over

time can manage to find 30.00

>

> To K

>

>

> ,

>

> I don't think you offended anyone with your messages. I took

them

> as heartfelt and as offering some ideas for those who are having

> difficulty financially. I also think you opened up a topic that

we

> don't talk about often due to pride, embarassment, privacy,

etc.

> But as a support group we need to talk about these things and

share

> ideas.

>

> You are correct: Many people belong to this listserve and think

> they are getting all the info they need. Magic offers so much

more

> and unless we talk about it, people may not know that. Just off

the

> top of my head I can think of: the newsletter, the medical

> articles, the protocols from Dr. H. regarding treatment for sick

> kids, the convention, and even the RSS/SGA book that

and

> Katy are working on for the doctors. I know there is more, but

I

> think you know what I mean.

>

> Anyway, don't think that you offended, please. At least I don't

> think you did. As I said, I think you brought up a topic that

needs

> to be discussed.

>

> Jodi Z.

>

>

>

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--Dear Jodi,

Bless you! Thank you! I'm trying to be very sensitive but

proactive at the same time. I'm not sure if these two traits can be

partners at times, but in the case of our children, I would walk

barefoot in Antartica for Connor if it meant helping him. And, I

know, after talking to people here and meeting people at convention,

they would do the same for their kids.

Talk to you soon,

Mom to Graham 7 (ADD); Cameron 4 (ADD); Connor IUGR, RSS, periactin,

Zantac, asymmetry, ciphosis.

- In RSS-Support , " Jodi Zwain " <magicrss@h...> wrote:

> ,

>

> I don't think you offended anyone with your messages. I took them

> as heartfelt and as offering some ideas for those who are having

> difficulty financially. I also think you opened up a topic that

we

> don't talk about often due to pride, embarassment, privacy, etc.

> But as a support group we need to talk about these things and

share

> ideas.

>

> You are correct: Many people belong to this listserve and think

> they are getting all the info they need. Magic offers so much

more

> and unless we talk about it, people may not know that. Just off

the

> top of my head I can think of: the newsletter, the medical

> articles, the protocols from Dr. H. regarding treatment for sick

> kids, the convention, and even the RSS/SGA book that and

> Katy are working on for the doctors. I know there is more, but I

> think you know what I mean.

>

> Anyway, don't think that you offended, please. At least I don't

> think you did. As I said, I think you brought up a topic that

needs

> to be discussed.

>

> Jodi Z.

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Share on other sites

--Dear Jodi,

Bless you! Thank you! I'm trying to be very sensitive but

proactive at the same time. I'm not sure if these two traits can be

partners at times, but in the case of our children, I would walk

barefoot in Antartica for Connor if it meant helping him. And, I

know, after talking to people here and meeting people at convention,

they would do the same for their kids.

Talk to you soon,

Mom to Graham 7 (ADD); Cameron 4 (ADD); Connor IUGR, RSS, periactin,

Zantac, asymmetry, ciphosis.

- In RSS-Support , " Jodi Zwain " <magicrss@h...> wrote:

> ,

>

> I don't think you offended anyone with your messages. I took them

> as heartfelt and as offering some ideas for those who are having

> difficulty financially. I also think you opened up a topic that

we

> don't talk about often due to pride, embarassment, privacy, etc.

> But as a support group we need to talk about these things and

share

> ideas.

>

> You are correct: Many people belong to this listserve and think

> they are getting all the info they need. Magic offers so much

more

> and unless we talk about it, people may not know that. Just off

the

> top of my head I can think of: the newsletter, the medical

> articles, the protocols from Dr. H. regarding treatment for sick

> kids, the convention, and even the RSS/SGA book that and

> Katy are working on for the doctors. I know there is more, but I

> think you know what I mean.

>

> Anyway, don't think that you offended, please. At least I don't

> think you did. As I said, I think you brought up a topic that

needs

> to be discussed.

>

> Jodi Z.

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,

I do to know what a latte is. I was being facetious. Darn the limitations of

print. I share your opinion of it. I absolutely live on coffee hence the e-mail

handle. A friend gave me an espresso maker a while back, I can't drink the

regular stuff anymore, I'm hooked. I guess that could be my sacrifice for a

Magic membership, switch to coffee, it's a little cheaper.

To K

>

>

> ,

>

> I don't think you offended anyone with your messages. I took

them

> as heartfelt and as offering some ideas for those who are having

> difficulty financially. I also think you opened up a topic that

we

> don't talk about often due to pride, embarassment, privacy,

etc.

> But as a support group we need to talk about these things and

share

> ideas.

>

> You are correct: Many people belong to this listserve and think

> they are getting all the info they need. Magic offers so much

more

> and unless we talk about it, people may not know that. Just off

the

> top of my head I can think of: the newsletter, the medical

> articles, the protocols from Dr. H. regarding treatment for sick

> kids, the convention, and even the RSS/SGA book that

and

> Katy are working on for the doctors. I know there is more, but

I

> think you know what I mean.

>

> Anyway, don't think that you offended, please. At least I don't

> think you did. As I said, I think you brought up a topic that

needs

> to be discussed.

>

> Jodi Z.

>

>

>

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Share on other sites

,

I do to know what a latte is. I was being facetious. Darn the limitations of

print. I share your opinion of it. I absolutely live on coffee hence the e-mail

handle. A friend gave me an espresso maker a while back, I can't drink the

regular stuff anymore, I'm hooked. I guess that could be my sacrifice for a

Magic membership, switch to coffee, it's a little cheaper.

To K

>

>

> ,

>

> I don't think you offended anyone with your messages. I took

them

> as heartfelt and as offering some ideas for those who are having

> difficulty financially. I also think you opened up a topic that

we

> don't talk about often due to pride, embarassment, privacy,

etc.

> But as a support group we need to talk about these things and

share

> ideas.

>

> You are correct: Many people belong to this listserve and think

> they are getting all the info they need. Magic offers so much

more

> and unless we talk about it, people may not know that. Just off

the

> top of my head I can think of: the newsletter, the medical

> articles, the protocols from Dr. H. regarding treatment for sick

> kids, the convention, and even the RSS/SGA book that

and

> Katy are working on for the doctors. I know there is more, but

I

> think you know what I mean.

>

> Anyway, don't think that you offended, please. At least I don't

> think you did. As I said, I think you brought up a topic that

needs

> to be discussed.

>

> Jodi Z.

>

>

>

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