Re: Adrenarche vs puberty - need help - endo appt Monday

[Guest guest]

Danita,

Please see my previous reply to Pat for statistics on . His situation

sounds very

similar to yours. While his bone advanced steadily after showing signs of

adrenarche, he

had a huge bone age advancement at 8 years old. If we had known then what we

know

now, he probably should have started the aromatase inhibitor then to prevent

that

increase. He didn't start it until he was 10 yrs. 4 mos. and this was after a

long battle

between Dr. H & our local endo. Good luck to you.

Kim C.

> All,

>

> Deianira has been exhibiting signs of pre-puberty for MANY years -

> she started with pubic hair and armpit hair at 3 years old and the

> body odor/acne started at 4 years old. She is nine now.

>

> We were told by Dr. H in Chicago that we need to have another bone

> age done - and if she has progressed more than 1 year in bone age

> since her last study (last year), then we need to start Arimadex

> (spelling?).

>

> I brought this up to her endo over a phone call after the convention

> and endo is not happy about the idea. He stated that we should not

> do so since she has been in this stage for so long now that it is

> not a concern. He did say that we could do another bone age and that

> he would talk with Dr. H before our appt on Monday. I fear that he

> may still give some push back and would like some feedback on others

> that have had to fight the local endo. What are some defenses I can

> use? Why Arimadex versus other meds?

>

> I understand the catch up growth and why we need to proceed in the

> fashion, but what verbage can I use against an endo?

>

> Thanks all!

>

> Danita - Mom to Cory - 11 year old Tourette's & Childhood migraines,

> non-rss; - 11 year old non-rss; Deianira - 9 year old RSS &

> IUGR, - 7 year old asthma & Hershsprung's, non-rss; Blaine -

> 2 year old HSP (Henoch-Schoenlien Purpura), non-rss

[Guest guest]

Danita - I had no idea that your other children had medical issues,

as well -- boy do you have your hands full! I have been a member of

the oley.org group for a while now (I have learned so much about g-

tubes and other enteral feedings). It is there that i learned about

Hershsprung's -- is your son fed enterally?

Re adrenarche and our kids. You can expect a LOT of push back.

There simply isn't that much published data on this subject yet, and

these meds are NOT FDA-approved yet. There are multiple studies all

occuring on the subject of using the meds to postpone adrenarche, in

the hopes that it will also push back puberty allowing more time to

grow. So Dr. H isn't using a " new " theory -- just an unproven one

at this time.

Because she has so many RSS/SGA patients, she sees " anecdotal "

evidence far greater than most of these studies even have enrolled

in their studies! But again, it is just her experience.

So.... you are going to have to trust your local dr and Dr. H. Dr.

H seems to be quite good at talking with local drs and " convincing "

them of her " ways " . But you are likely to get push back.

> All,

>

> Deianira has been exhibiting signs of pre-puberty for MANY years -

> she started with pubic hair and armpit hair at 3 years old and the

> body odor/acne started at 4 years old. She is nine now.

>

> We were told by Dr. H in Chicago that we need to have another bone

> age done - and if she has progressed more than 1 year in bone age

> since her last study (last year), then we need to start Arimadex

> (spelling?).

>

> I brought this up to her endo over a phone call after the

convention

> and endo is not happy about the idea. He stated that we should not

> do so since she has been in this stage for so long now that it is

> not a concern. He did say that we could do another bone age and

that

> he would talk with Dr. H before our appt on Monday. I fear that he

> may still give some push back and would like some feedback on

others

> that have had to fight the local endo. What are some defenses I

can

> use? Why Arimadex versus other meds?

>

> I understand the catch up growth and why we need to proceed in the

> fashion, but what verbage can I use against an endo?

>

> Thanks all!

>

> Danita - Mom to Cory - 11 year old Tourette's & Childhood

migraines,

> non-rss; - 11 year old non-rss; Deianira - 9 year old RSS

&

> IUGR, - 7 year old asthma & Hershsprung's, non-rss;

Blaine -

> 2 year old HSP (Henoch-Schoenlien Purpura), non-rss