Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 In a message dated 6/4/01 8:15:53 AM Eastern Daylight Time, jcannon@... writes: > > Do you think that Seroussi had such success with her son because she > kept the diet so simple? (i.e. rice, chicken, potatoes) Do you think > there is something to keeping your child's menu this basic? What do you > think? > > > My opinion is that Karyn's dramatic success can be attributed to both Miles' age when she started the diet and how very simple his diet was. Of course, I am sure there are other children who also had dramatic success with the diet that we don't hear about because their parents have not written books about their experiences. I think most parents who move through this tend to want to get on with their lives and put this stuff behind them. We are extraordinarily luckily that Karyn was willing to share. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 | Do you think that Seroussi had such success with her son because she | kept the diet so simple? (i.e. rice, chicken, potatoes) Do you think | there is something to keeping your child's menu this basic? What do you | think? I'd agree with this. My own approach is to reduce my daughter's diet to the simplest of pure foods to keep things simple and reduce the chance of reactions. I felt like I was beating my head against the wall until I did this, as my daughter reacted to so many things. The bulk of her diet is chicken meatballs seasoned with garlic powder and sea salt, green soup (pure chicken broth, leeks, kale, brocolli and olive oil), homecooked beans with salt and oil, raw green veggies, rice crackers and pears. She avoids the red/orange colors, all addtives, most phenols, bad fats, yeasty/sugary foods, and a long list of allergens. This is extreme, I realize. And it took a long time to get to the point where she'd eat these foods, but she willingly eats them now that she's healthier. It's a process. K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 In a message dated 6/4/01 1:42:35 PM Eastern Daylight Time, maureenvh@... writes: > > I agree. Most people on web groups are still having " issues " . On my > preemie > groups, those of us involved are still working on preemie issues. Those > who have > sailed through or " fixed " their problems seem to move on. Btw, don't you > just > " love " people who tell you to " get over it " ? If I hear that one more time, > I'll > scream! > > I can relate to that only TOO well...my m-i-l says I should move on and accept as he is....sheesh...he just turned three today for Pete's sake. What they really mean to say is stop doing what you are doing for your child because it is interfering in their lives... On a related note, I have heard from different sources that even the children that people claim are recovered still have " issues " and therefore the inference is that various treatments aren't worth pursuing. Show me a human being on the planet that doesn't have " issues " and then I'll stop trying to help my child. I guess you can see pathology in any behavior or personality quirk if you look hard enough. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 > > > My opinion is that Karyn's dramatic success can be attributed to both Miles' > age when she started the diet and how very simple his diet was. Of course, I > am sure there are other children who also had dramatic success with the diet > that we don't hear about because their parents have not written books about > their experiences. I think most parents who move through this tend to want > to get on with their lives and put this stuff behind them. We are > extraordinarily luckily that Karyn was willing to share. > I agree. Most people on web groups are still having " issues " . On my preemie groups, those of us involved are still working on preemie issues. Those who have sailed through or " fixed " their problems seem to move on. Btw, don't you just " love " people who tell you to " get over it " ? If I hear that one more time, I'll scream! Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I would have to concur... she started Miles at a very very early age (before age 2.) She also did many other interventions with the diet: Supplements, ABA, and many others. I think the combo approach, the early intervention and complete and utter conviction of those two parents made a positive outcome for Miles. We all dream about this, don't we? Hugs A Jeffs mom Re: Seroussi's success In a message dated 6/4/01 8:15:53 AM Eastern Daylight Time, jcannon@... writes: > > Do you think that Seroussi had such success with her son because she > kept the diet so simple? (i.e. rice, chicken, potatoes) Do you think > there is something to keeping your child's menu this basic? What do you > think? > > > My opinion is that Karyn's dramatic success can be attributed to both Miles' age when she started the diet and how very simple his diet was. Of course, I am sure there are other children who also had dramatic success with the diet that we don't hear about because their parents have not written books about their experiences. I think most parents who move through this tend to want to get on with their lives and put this stuff behind them. We are extraordinarily luckily that Karyn was willing to share. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 .. Btw, don't you just > " love " people who tell you to " get over it " ? If I hear that one more time, I'll > scream! > > Maureen My favorite was a previously very good friend who told me to " keep a stiff upper lip " when I told her my sweet baby has mild autism. She also advised me to read to her, do flash cards with her and play with her more. (She is the parent of only 1 healthy child). Next time we talked, her comment was to " keep my chin up " . Needless to say...that friendship is mostly in the past. In fact, I'm gravitating toward parents of other special needs children now. Others just can't relate. H, mommy to 3.5 yrs, PDD; and 2 yrs, NT. (11 weeks gfcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I just have to jump in here and tell you my experience. I have several friends with children around the same age as my son with speech delays. My friends are constantly talking about how chatty their children are and wishing they would stop talking so much. One day I went to lunch with two of these friends and the conversation came up again. I have not revealed to anyone about the testing and dx because I did not want people to prejudge my child but I finally decided to tell them about the problems I was having and encouraged them to delight in their childrens excitment and their talking. One friend proceeded to tell me I was worrying too much and that my son will be ok and the other friend started offering suggestions like you need to 'read more' - I know they were trying to be helpful but I just wanted to scream. I'm so glad I found this group!!! Joyce > . Btw, don't you just > > " love " people who tell you to " get over it " ? If I hear that one more > time, I'll > > scream! > > > > Maureen > > > My favorite was a previously very good friend who told me to " keep a stiff > upper lip " when I told her my sweet baby has mild autism. She also advised > me to read to her, do flash cards with her and play with her more. (She is > the parent of only 1 healthy child). Next time we talked, her comment was > to " keep my chin up " . Needless to say...that friendship is mostly in the > past. In fact, I'm gravitating toward parents of other special needs > children now. Others just can't relate. > > H, mommy to 3.5 yrs, PDD; and 2 yrs, NT. (11 weeks gfcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I just have to jump in here and tell you my experience. I have several friends with children around the same age as my son with speech delays. My friends are constantly talking about how chatty their children are and wishing they would stop talking so much. One day I went to lunch with two of these friends and the conversation came up again. I have not revealed to anyone about the testing and dx because I did not want people to prejudge my child but I finally decided to tell them about the problems I was having and encouraged them to delight in their childrens excitment and their talking. One friend proceeded to tell me I was worrying too much and that my son will be ok and the other friend started offering suggestions like you need to 'read more' - I know they were trying to be helpful but I just wanted to scream. I'm so glad I found this group!!! Joyce > . Btw, don't you just > > " love " people who tell you to " get over it " ? If I hear that one more > time, I'll > > scream! > > > > Maureen > > > My favorite was a previously very good friend who told me to " keep a stiff > upper lip " when I told her my sweet baby has mild autism. She also advised > me to read to her, do flash cards with her and play with her more. (She is > the parent of only 1 healthy child). Next time we talked, her comment was > to " keep my chin up " . Needless to say...that friendship is mostly in the > past. In fact, I'm gravitating toward parents of other special needs > children now. Others just can't relate. > > H, mommy to 3.5 yrs, PDD; and 2 yrs, NT. (11 weeks gfcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 > > In fact, I'm gravitating toward parents of other special needs > children now. Others just can't relate. > > H, mommy to 3.5 yrs, PDD; and 2 yrs, NT. (11 weeks gfcf) > Same for us. I keep hearing about how " if I just make up my mind that will talk, he will. " Well. if it were that easy, both my little guys would be working on their noble prize and their only 5! My mil always says that I think I know everything. Finally, dh told her that until she walks our path, she is in no position to give us advice. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 > > In fact, I'm gravitating toward parents of other special needs > children now. Others just can't relate. > > H, mommy to 3.5 yrs, PDD; and 2 yrs, NT. (11 weeks gfcf) > Same for us. I keep hearing about how " if I just make up my mind that will talk, he will. " Well. if it were that easy, both my little guys would be working on their noble prize and their only 5! My mil always says that I think I know everything. Finally, dh told her that until she walks our path, she is in no position to give us advice. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I know what you are talking about -hearing others complain about their kids talking. It used to make me cry. All I wanted to hear was 'Mommy', which I got just as he reached his second birthday. In our case, it took our son 'til is 3rd birthday, but he is now testing normal in speech development. Even as he babbles I simply cannot get irritated at the sound of his voice. It brings me such happiness that he finally uses words. By the way, my father still insists that our son was delayed because we gave into him and let him have his way when our son pointed versus vocalized. We were also given the 'you should read' more lecture from a parent educator. Well, I have a 'normal' child as my second one, and there is a big difference reading to a child who wants you to than reading to a child who completely ignores your existence. > > . Btw, don't you just > > > " love " people who tell you to " get over it " ? If I hear that one > more > > time, I'll > > > scream! > > > > > > Maureen > > > > > > My favorite was a previously very good friend who told me to " keep a > stiff > > upper lip " when I told her my sweet baby has mild autism. She also > advised > > me to read to her, do flash cards with her and play with her more. > (She is > > the parent of only 1 healthy child). Next time we talked, her > comment was > > to " keep my chin up " . Needless to say...that friendship is mostly > in the > > past. In fact, I'm gravitating toward parents of other special > needs > > children now. Others just can't relate. > > > > H, mommy to 3.5 yrs, PDD; and 2 yrs, NT. (11 weeks > gfcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 > > > I have discovered how very JUDGEMENTAL that I used to be towards other > parents because they couldn't control thier children. HOW WRONG I WAS Me too! Now I am more inclined to wonder what hidden problem does the child have. My kids were never going to act up in public! lol Boy, have I been humbled in that respect. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Thank you for sharing that. Sometimes I wish I could just hide (from friends, husband, society, everyone I guess) and just deal with this by myself. I know that sounds stupid but it's just what I'm feeling right now. I was so excited yesterday and I still am hopeful but I presented this information (diet/autistism connection) to my husband last night and it didn't go over too well. He is in so much denial that there is anything wrong. Joyce > Hi everyone.... > > I've got to add my 2 cents here... > > I am the mother of 5.... 4 NT children and one with Autism....... I had > 12 years with NT children and then along came ...... > > I must tell you after being on both sides I am ashamed to say that I used > to think some of the same thoughts that were expressed by your rude > " friends " I can say however, I never had the audacity to actually say my > rude thought out loud... > > What I have learned from this whole experience is that each and every > child is unique and each is a GIFT from GOD... Something else that I've > learned is that I don't have parenting figured out the way that I thought > that I did when I just had 3 " normally developing " children..... Each of > my 5 children responds differently to different types of discipline and > different situations. A true friend will listen and try to learn what > you are experiencing.... If they aren't willing to " go there " with you > then perhaps they aren't your friend at all. > > I have discovered how very JUDGEMENTAL that I used to be towards other > parents because they couldn't control thier children. HOW WRONG I WAS > .... Believe me, since that time I have walked 10,000 miles in their > shoes and I now have a greater ability to look at situtaions and realize > that 9 times out of 10 there's more to a situation than meets the eye. > > As far as your rude " friends " go, I've decided that the next time one of > my " friends " offers me " helpful " advice that I might just invite them to > come to my home and spend some time getting to know my Autistic son. > People who want to offer advice before they have the whole picture are > IGNORANT OF THE FACTS. I guess it's best to ignore them most of the time > because they are truly ignorant! > > Leigh > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 I'm sorry! It is much easier when both parents agree. My husband does not have much time to put towards this whole effort, so he relies solely on me to do what I think is in our son's best interest. There have been only a couple of times where he thought I was wrong, but backed down after being presented with online evidence. That must be tough for you to have to battle him. There is no harm in trying this diet for a month, though. Instead of trying to convince him, just change your son's diet and insist that your DH comply for a month. > > Hi everyone.... > > > > I've got to add my 2 cents here... > > > > I am the mother of 5.... 4 NT children and one with Autism....... I > had > > 12 years with NT children and then along came ...... > > > > I must tell you after being on both sides I am ashamed to say that I > used > > to think some of the same thoughts that were expressed by your rude > > " friends " I can say however, I never had the audacity to actually > say my > > rude thought out loud... > > > > What I have learned from this whole experience is that each and > every > > child is unique and each is a GIFT from GOD... Something else that > I've > > learned is that I don't have parenting figured out the way that I > thought > > that I did when I just had 3 " normally developing " children..... > Each of > > my 5 children responds differently to different types of discipline > and > > different situations. A true friend will listen and try to learn > what > > you are experiencing.... If they aren't willing to " go there " with > you > > then perhaps they aren't your friend at all. > > > > I have discovered how very JUDGEMENTAL that I used to be towards > other > > parents because they couldn't control thier children. HOW WRONG I > WAS > > .... Believe me, since that time I have walked 10,000 miles in their > > shoes and I now have a greater ability to look at situtaions and > realize > > that 9 times out of 10 there's more to a situation than meets the > eye. > > > > As far as your rude " friends " go, I've decided that the next time > one of > > my " friends " offers me " helpful " advice that I might just invite > them to > > come to my home and spend some time getting to know my Autistic son. > > People who want to offer advice before they have the whole picture > are > > IGNORANT OF THE FACTS. I guess it's best to ignore them most of the > time > > because they are truly ignorant! > > > > Leigh > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 > Thank you for sharing that. Sometimes I wish I could just hide (from > friends, husband, society, everyone I guess) and just deal with this > by myself. I know that sounds stupid but it's just what I'm feeling > right now. > > I was so excited yesterday and I still am hopeful but I presented this > information (diet/autistism connection) to my husband last night and > it didn't go over too well. He is in so much denial that there is > anything wrong. > Joyce Joyce, this is a very hard situation to be in, but I guarantee you that many of us have walked in your shoes. I certainly have! I was studying to become an RN when I first began to see the signs of autism. I had even written a paper in college on it for my Psychology class. I was certain my son was autistic and he was only 18 months old. I couldn't get anyone to believe there was a problem, not even the doctors. I got the same old, blah, blah lines........ My husband was the worst. He was in total denial until my son was 3 years of age. It wasn't until my son was 2.3 years of age before someone listened. It still took until he was 3 to get the actual dx. Unfortunately, despite the dx, my husband never handled any of it well. I was never helped. He never read info that I gave him on the diet or autism. Our situation never got better, but thankfully did. I recently took to a doctor who felt that he no longer qualified for the autism label, which is music to my ears. A lot of hard work went into getting there, and sadly enough his father wasn't part of any of it. He now acknowledges that fact, but I find it terribly sad that he stood by and let me carry the load, alone. We separated in October and our divorce will be final in another month. I hope that you can get your husband to be supportive and work with you. This is definately one of those situations that falls under, " For better or for worst! " , so try to light a fire under him, but if you can't, you have to take control for your son. I did exactly that, and I will never regret it. I'm thankful that my son's father supports the diet. He finally believed in something. a - Madison WI mom to Alec 6.10, 5 (ASD), 3.3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Jeanne Luster wrote: > That must be tough for you to have to battle him. There is no harm > in trying this diet for a month, though. Instead of trying to > convince him, just change your son's diet and insist that your DH > comply for a month. That's easier said than done. I went out the other night. I had fed dd before I left. When I got home, dh had fed her pizza. He understood the diet and told me a little pizza wouldn't hurt. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Sure, it's easier said than done. Not many people are willing to end a marriage over the issue, I know that. If your husband fed her pizza, he did not understand the diet, and therefore can no longer be trusted. I would let him know that he had broken a trust with you. Anyway, I am stepping out of the bounds of GFCFKids when I give this advice, so I will stop. Most people don't appreciate my 'do it my way' attitude > > That must be tough for you to have to battle him. There is no harm > > in trying this diet for a month, though. Instead of trying to > > convince him, just change your son's diet and insist that your DH > > comply for a month. > > That's easier said than done. I went out the other night. I had fed dd > before I left. When I got home, dh had fed her pizza. He understood > the diet and told me a little pizza wouldn't hurt. > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Dawn, it may be your husband's way of trying to re-assure himself that dd's problem is not that serious, and he really doesn't have to go that far (doing the diet). . > > That must be tough for you to have to battle him. There is no harm > > in trying this diet for a month, though. Instead of trying to > > convince him, just change your son's diet and insist that your DH > > comply for a month. > > That's easier said than done. I went out the other night. I had fed dd > before I left. When I got home, dh had fed her pizza. He understood > the diet and told me a little pizza wouldn't hurt. > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Joyce, Do you think that your husband would be convinced by the book that Karyn Seroussi wrote titled " Unraveling the Mysteries of Autism and Pervasive Development Disorder? I will tell you from my own experience that this book really solidified any thoughts that I had about putting my child on the diet. did start to improve SOME before the diet, but we noticed actual understanding of some language that we attribute soley to the diet. He is 5 and has some spontaneous speech, alot of verbal im and the ability to READ SOME WORDS of all things. He looks at us now and smiles and has a whole littany of pre academic skills.. The diet is demanding and hard at times, but I look at every day and know that we must do it. He is so HEALTHY now. he weighs 47 pounds and looks great., hardly ever gets sick and is showing signs of understanding language more each day. He actually played football with me and enjoyed it the other day too. I totally understand your deisre to hide.... There are so many days when running away seems like the best answer... with all of the demands of 4 children and 1 " autistic child " it gets a little overwhelming some times. With all the interventions (diet, therapy, chiropractic, allergy, vitamins and minerals) in addition to trying to keep him engaged and out of trouble, sometimes it seems like giving up is the answer. Many times in the past 4 years, I have looke at Josh and wondered if it would have been more merciful for him just to die a peaceful death instead of having to go through the life changing regression that occurred after his vaccines at 13 months. I felt like I had my hands tied and I was being made to watch my son being tortured without the ability to do anything about it. THANK GOD for DAN Doctors and Congressman Burton, Karyn Seroussi, Dr. Wakefield, Dr. McCandless, Dr. Singh, Dr. Rimland, Dr. Lovaas, and the list could go on and on... these blessed souls have given me the one thing that I had totally lost HOPE.... HOPE FOR A BRIGHTER FUTURE for my precious little boy that was taken from me 4 years ago Then there are those little glimmers of hope when he actually reaches out and touches me and says " Ma " or looks at me and says " sorry " when I'm fussing at him. Then there was the day just last week when he said " I know, I sees it. " Just yesterday, he picked up a piece of bread and his sister yelled " no Josh " . He gave me the most sheepish grin, shook his head no and said " ok... ok " and handed me the bread. What an improvement over the little guy that could not even look at me just 3 short years ago. He had lost all speech, could not interact and would not smile. His days were filled with HORROR, FEAR AND STIMMING. No laughter and no JOY. I am also a praying person and he used to SCREAM when I'd try to pray in front of him. He now lets me sing spiritual songs and " pray " him to sleep every night. It's so sweet to see him just snuggle down in his covers and smile as I sing and pray over him. I'll say a prayer for you today... Leigh On Tue, 05 Jun 2001 12:13:41 -0000 harpej@... writes: > Thank you for sharing that. Sometimes I wish I could just hide (from > > friends, husband, society, everyone I guess) and just deal with this > > by myself. I know that sounds stupid but it's just what I'm feeling > > right now. > > I was so excited yesterday and I still am hopeful but I presented > this > information (diet/autistism connection) to my husband last night and > > it didn't go over too well. He is in so much denial that there is > anything wrong. > Joyce> ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 At 02:27 PM 6/5/01 +0000, you wrote: >Sure, it's easier said than done. Not many people are willing to end >a marriage over the issue, I know that. Thankfully after a few fits on my part, and several episodes of cheating by our son leading to what are now apparent patterns of regression this is not an issue in our home. Even our daughters, especially the older one (10 yr old) are supportive. Our son has started learning about the foods he can't eat. And my joining him on the diet is helpful I think too. Our neighbors are also very respectful of our wishes. The kids in our neighborhood play together, including our son so this is very important. And the only foods not on the diet we're bringing into the house anymore are milk and bread, for my wife and our two daughters. Our son hasn't gone for those at all; he wants the cookies and that; he's got to get those by sneaking past one of us into a neighbor's house kind of thing. Which happens occasionally. Those are the weeks that he pees on the floor, for fun. It's now become a pretty obvious pattern. Next comes the bigger challenge. My in-laws are visiting sometime this summer. And my wife is going to have to ask them not to bring anything into the house for the kids that our son can't have. And to refrain from most of that stuff themselves as well while staying with us. I'm glad for this opportunity because we're going to their house this coming winter and will have to ask they do the same in their home while we visit. I've gone through phases with this diet of first thinking it's easy, now realizing that in a million subtle ways it's very hard. When will these researchers, and the organizations that fund them get it together and find a more realistic 'cure' for our children? Marty (who used to work in a physiological psych research lab in college) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 In a message dated 6/4/01 6:46:11 PM Central Daylight Time, maureenvh@... writes: > > I have discovered how very JUDGEMENTAL that I used to be towards other > > parents because they couldn't control thier children. HOW WRONG I WAS > > Me too! Now I am more inclined to wonder what hidden problem does the child > have. My kids were never going to act up in public! lol Boy, have I been > humbled in that respect. > > Maureen > > > ME TOO!!! I find myself convinced that I can dx other people' s children. Isn't that sad? I think I am becoming like people that think a spanking would cure my niece when she has a melt down, but I'm not trying to solve the problem I am just identifying it AND I don't presume it is my place to tell the parents. Shirley Quote Link to comment Share on other sites More sharing options...
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