Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 first let me say THANK YOU TO EVERY ONE.it so good to know i'm not alone. i go back to my endo next wed and i think he is preety new. i have already made the mistake of letting him do the RAI right off the bat,I have only found this site 3 or 4 days ago but i already feel much more informed. I know i need to go to this app well armed i had the rai 6 months ago and he has only check my levels once so far and i'm sure he will wed I also have had arthritis sence the age of 6 or 7 ,and i have had the graves symptoms for 6 years but had no ins. is my arthitis going to continue to get worse now that i let them do the RAI . I HAVE JUST LEARED THAT IT IS SLSO A AUTOIMMUNE DISEASE? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 I had RAI 4-01, and with fairly competent doctors, it took me until 2-03 to get my old self back. There was a yo yo time when my levels just jumped around, and felt a little hyper even though labs said I was a little hypo (still had palpitations). Endo wanted me to try cytomel which is a T3 with my synthroid (T4), because he didn't think I was converting my T4 into T3's, but wanted to wait till I didn't have palpitations anymore. They finally went away, and adding the cytomel greatly helped my over all feeling of well being. But it was a two year process. I now watch everything that I eat (ok, saw that oatmeal raisin cookie fly in my mouth), but I stay away from processed foods as much as I can, stay away from sugars, and exercise regularly. I can still get stressed out easier than I every use to. Two weekends ago, I planted three rose bushes in African like heat (but I had to get them in the ground), had to remove sod, enhance the soil, ect. I kept myself well hydrated, but it took three hours, with breaks, and I was worn out. It took me from that Saturday to the following Wednesday to feel better. (I went to work during the time, but I sure wasn't feeling top of the world). Good luck getting your life back, it is a constant journey, but well worth it. It just takes time, patience, a good doctor, and an informed patient. Jen M new guy with ? > first let me say THANK YOU TO EVERY ONE.it so good to know i'm not > alone. i go back to my endo next wed and i think he is preety new. i > have already made the mistake of letting him do the RAI right off > the bat,I have only found this site 3 or 4 days ago but i already > feel much more informed. I know i need to go to this app well armed > i had the rai 6 months ago and he has only check my levels once so > far and i'm sure he will wed I also have had arthritis sence the age > of 6 or 7 ,and i have had the graves symptoms for 6 years but had no > ins. is my arthitis going to continue to get worse now that i let > them do the RAI . I HAVE JUST LEARED THAT IT IS SLSO A AUTOIMMUNE > DISEASE? > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 If you are hypo, you will probably have a lot of muscle pain so it will seem that your arthritis is worse. The saying is once you get an autoimmune disease, you are more likely to get other autoimmune diseases . Aileen >>> josephmayrand@... 08/05/03 14:59 PM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Hi ph: The *key* thing for you is to get the tests taken periodically...the ones that matter. -Free T3, -Free T4. -To placate your doctor, also allow him to do the almost worthless TSH. -If possible, also get a TSI now or soon (maybe wait on this if your eyes aren't bothering you...but check it 2 times a year.) As far as your question about, are you now likely to have worst arthritis....I *strongly suggest* that you re-program your belief system and have the answer as " no " or " not necessarily. " The truth is that you can't tell if there will be more arthritis problems...so please try not to focus more worry on that. When you are receiving proper treatment (medication), I also strongly suggest that you get into an exercise program. Exercise...weight bearing exercise...is known to lower stress & also to reduce arthritis symptoms. Pick an exercise you like...even if it is walking fast 3 to 4 times a week. I do power walking on the days that I don't swim laps...and it helps my flexibility. I also helps with weight control...and I need help in that area. Best to you, Ron > first let me say THANK YOU TO EVERY ONE.it so good to know i'm not > alone. i go back to my endo next wed and i think he is preety new. i > have already made the mistake of letting him do the RAI right off > the bat,I have only found this site 3 or 4 days ago but i already > feel much more informed. I know i need to go to this app well armed > i had the rai 6 months ago and he has only check my levels once so > far and i'm sure he will wed I also have had arthritis sence the age > of 6 or 7 ,and i have had the graves symptoms for 6 years but had no > ins. is my arthitis going to continue to get worse now that i let > them do the RAI . I HAVE JUST LEARED THAT IT IS SLSO A AUTOIMMUNE > DISEASE? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Aileen Fletcher Assistant professor of Art New River Community College Dublin, Va. 24084 nrfleta@... , ext. 4468 >>> swimmerron@... 08/06/03 06:18 AM >>> Ron, Not all people with RA can do heavy exercise, so ph needs to check with his docor on that one. Most can do your favorite sport--swim and it's good for them. Aileen Quote Link to comment Share on other sites More sharing options...
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