Re: Cara~debby

[Guest guest]

hi

yes i ment it as a good thing.i spoke to his teacher today and she said it was

no problem with him and his classmates with the snack althought they alll

wanted a snack too but she told why and that they did not need snack like jacob

and they were all fine after that.

cara mom to jacob

" Debby B. " wrote:

Well thanks Cara..........is that a good thing, my way with words, or a bad

thing? LOL I was rushing a bit, I have to give Adam his needle and get

things ready (yeh, we stay up late in the summer, but our days are

numbered).

The teachers Adam has had have always let him eat in class. Some did it

reluctantly, but I remember his grade 3 teacher would eat more often than he

did and his grade 4 teacher use to get so hungry watching him eat, I would

pack snacks for " Mr. Mac " too! You get all kinds. But I would never

allow him to have to leave to eat. First, Adam would NEVER be in class, even

if he didn't want to eat, he'd be gone just because it got him out of class,

second he would be missing things in his learning and thirdly, I think it

centres them out even more than munching at their desk while they work.

OK I better get moving here. I want to catch a bit more of the Olympics

before I go to bed.

Debby

Re: School Letter / Handout-- Debby

>

>

> >

> > Hi Debby,

> > OI is the Brittle Bone Disease. Their bones can break from little

> > or no cause. Jostling in a crowd could break arms, a fall could

> > mean a skull fracture (any bone can break with a fall), pulling

> > could dislocate any joint, etc. For example my husband broke his

> > arm rolling over in the crib and broke both legs when he tripped

> > over a pillow. Pretty much anything can cause a break with any

> > child but with OI the kids are just that much more fragile, getting

> > her foot stepped on could break bones in her foot. We really want

> > to stress that Olivia is not to be picked up since she's been having

> > rib and vertebra fractures, either of these could lead to a

> > catastrophic injury. On the other hand we don't want her to be

> > ostrasized (sp) or the kids scared of her... this is where we are

> > on the fence. One good thing is that Olivia has been to the school

> > twice a day for 4 years dropping off and picking up so she's

> > already very well known and a celebrity of sorts since the kids are

> > very drawn to her but they aren't educated on her issues.

> > We're really concentrating on " self awarness " this year with her.

> > The aide will help Olivia make decisions about waiting for the rush

> > of kids to clear the entry before she goes outside, etc.

> >

> > Hope this explains it a bit better, if not let me know!

> > Leah

> >

> >

> >

> >

> >

> > > >

> > > > Hello to all,

> > > >

> > > > We're in a bit of a quandry right now as to weather or not

> > send a

> > > > handout home with the kids in Olivia's school. While it will

> > have

> > > > RSS in it and the reason why she's small, it will also contain

> > info

> > > > about Osteo Genesis Imperfecta. It will make them aware of

> > Olivia

> > > > (hopefully) and reinforce that we don't pick-up, push, pull,

> > > > trample, etc, our friends. Many of the people in my OI Group do

> > > > this for their kids and it's written from the viewpoint of the

> > > > child, ie: " I like to play all of the same games as other girls

> > my

> > > > age " , " My phone number is ____ if you have any questions you can

> > ask

> > > > my Mom or Dad " , " I need to snack often because " , " It's not your

> > > > fault if I break " etc.

> > > >

> > > > I will be joining Olivia's class in the first week of school

> > and

> > > > explaining to them why Olivia needs to snack and why she's

> > smaller

> > > > than they are but the psycologist (sp) at her last case meeting

> > is

> > > > more concerned with the parents of the other kids grilling their

> > > > kids when they get home about the toddler in the class and those

> > > > kids then thinking that something is wrong with her. This would

> > > > also let the rest of the school be informed about her. Some

> > parents

> > > > include a photo of their child on the handout, I guess it's the

> > > > easiest way to recognize her but it feels weird like everyone

> > will

> > > > be " looking " for her...

> > > >

> > > >

> > > > So my question for all of you is... Would this be truly

> > positive

> > > > for Olivia or would she then be labeled as very different and a

> > kid

> > > > to stay away from?

> > > >

> > > > Her safety is very important to us but it also feels like

> > we're

> > > > singling her out from the rest.

> > > >

> > > > Any and all comments are greatly appreciated, both positive

> > and

> > > > negative, so that we can make the best decision for Olivia.

> > > >

> > > > Thanks!

> > > > Leah, mom to 9yrs and Olivia 4.75 yrs, 18lbs, 33 " , RSS,

> > OI,

> > > > tons of meds.

> > > >

> > > >

> > > >