School Letter / Handout

[Guest guest]

Hello to all,

We're in a bit of a quandry right now as to weather or not send a

handout home with the kids in Olivia's school. While it will have

RSS in it and the reason why she's small, it will also contain info

about Osteo Genesis Imperfecta. It will make them aware of Olivia

(hopefully) and reinforce that we don't pick-up, push, pull,

trample, etc, our friends. Many of the people in my OI Group do

this for their kids and it's written from the viewpoint of the

child, ie: " I like to play all of the same games as other girls my

age " , " My phone number is ____ if you have any questions you can ask

my Mom or Dad " , " I need to snack often because " , " It's not your

fault if I break " etc.

I will be joining Olivia's class in the first week of school and

explaining to them why Olivia needs to snack and why she's smaller

than they are but the psycologist (sp) at her last case meeting is

more concerned with the parents of the other kids grilling their

kids when they get home about the toddler in the class and those

kids then thinking that something is wrong with her. This would

also let the rest of the school be informed about her. Some parents

include a photo of their child on the handout, I guess it's the

easiest way to recognize her but it feels weird like everyone will

be " looking " for her...

So my question for all of you is... Would this be truly positive

for Olivia or would she then be labeled as very different and a kid

to stay away from?

Her safety is very important to us but it also feels like we're

singling her out from the rest.

Any and all comments are greatly appreciated, both positive and

negative, so that we can make the best decision for Olivia.

Thanks!

Leah, mom to 9yrs and Olivia 4.75 yrs, 18lbs, 33 " , RSS, OI,

tons of meds.