Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Hi everyone. I frequent several lists, so I jump in and out, but I wanted to give you all an update. We started the GFCF diet March 00, we saw a great difference. We did an infringement test in December after a total elimination diet. Within 3 weeks our son was having psychotic episodes, and hallucinating on a daily basis. We went back to STRICT GFCF diet. We started chelating our son in Decemeber (around the same time as diet infringement...yes silly us, NEVER try 2 things at once, sometimes we are in such a rush to fix...) SO we gave infringement test 2 this March. We have noticed regression, poor eye contact, and excessive flapping off the diet. It's funny, we never knew if the diet was " working " but you certainly notice a difference when off. It may not be immediate, it can be a slow trip down, but it was horrible. I have several friends who tried the diet for a year, with no change....I was hoping my child would be one that the diet did not help (I mean come on, we have to deal with this disability on a daily basis, fight IEP's, Tear down obnocheous on lookers, WHILE keeping our sanity in tact, WOULDN'T it be nice if we could just order a pizza, or go through a drive thru, instead of playing Martha too???) BUT, I would like to report, ON diet, my son is totally mainstreamed with a 100 average in spelling, and math, He is making NT friends (slowly but surely) and he is adjusting beautifully to the hard task of normalcy...Wanted to share, and for you newbies...It's a REAL rough road, but so worth it! -Shari Quote Link to comment Share on other sites More sharing options...
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