Re: Liam's Endo appointment

August 23, 2004

Hi ,

It must be a bit frustrating to not have the growth that you were

expecting. Hopefully the upping of the GH will do the trick. Good

luck with the Genetisist in Sept.

I'm so glad that you made it through Charley OK, I was really

thinking about you guys down there!

I miss you tons and can't wait to see you at the convention next

year (I hope!).

Hope to chat with you soon,

Leah, mom to 9 yrs and Olivia 4.75yrs, 18lbs, 33 " , RSS, OI,

tons of meds.

> Well we had Liam's Endo appointment on Wednesday, I was not

feeling well

> yesterday so that is why I am updating now......

>

> It seems He is not growing as well as I thought he was. He was

2'10 3/4 " in

> Feb. He started the GHT on May 18 and at this appointment he was

only 2'11

> 3/4 " .. So that was only one inch in 6 months and exactly 3 months

since

> starting GHT. So they upped his level from .6 to .7, we will see

if that

> helps.....

>

> Also his endo said he can very well hav a mild case of RSS, but

for some odd

> reason will not give the diagnoses.....

> we do goto the Genistist on sept. 8.....

>

> He did give him a new diagnoses of pituitary dwarfism. that was

never on the

> papers before, but is now.....

>

> Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

> SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

> and Jed (11 years old) Tourettes, CAPD,SVT.

> SW Orlando FL

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