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Hello to all!

We were up in Edmonton this morning for a Ped. check-up and....

Drum roll please.... Olivia has gained 1/2 a pound since the

convention!! She is officially now about 19lbs. There's been no

growth but that's OK since the goal right now is to get some meat on

her bones, not height velocity.

The Dr. really likes the smoothie concoction that we've made even

though it is quite high in sugar, with Olivia still being very

underweight we don't have to worry a lot about IR right now so we

can still give her the high cal smoothies.

That's about it for now!

Take care everyone,

Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

RSS, OI

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leah,

give olivia a big hug for me that is great news i am very happy for you guys.

cara mom to jacob

Leah wrote:

Hello to all!

We were up in Edmonton this morning for a Ped. check-up and....

Drum roll please.... Olivia has gained 1/2 a pound since the

convention!! She is officially now about 19lbs. There's been no

growth but that's OK since the goal right now is to get some meat on

her bones, not height velocity.

The Dr. really likes the smoothie concoction that we've made even

though it is quite high in sugar, with Olivia still being very

underweight we don't have to worry a lot about IR right now so we

can still give her the high cal smoothies.

That's about it for now!

Take care everyone,

Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

RSS, OI

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Oh wow Leah. That is absolutely WONDERFUL! Way to go. Keep up the

great work you two! :o)

Jodi R.

p.s. will get weighed today. Right now his last weight was 18

lbs. 12 oz. Wouldn't it be great if he was almost 19 lbs too!? :o)

I am just praying he didn't lose.

>

>

> Hello to all!

>

> We were up in Edmonton this morning for a Ped. check-up and....

> Drum roll please.... Olivia has gained 1/2 a pound since the

> convention!! She is officially now about 19lbs. There's been no

> growth but that's OK since the goal right now is to get some meat

on

> her bones, not height velocity.

> The Dr. really likes the smoothie concoction that we've made even

> though it is quite high in sugar, with Olivia still being very

> underweight we don't have to worry a lot about IR right now so we

> can still give her the high cal smoothies.

>

> That's about it for now!

> Take care everyone,

> Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

> RSS, OI

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Yeah Olivia!!!! :) By the way Leah, how is Olivia doing in school

and how did your letter to the parents go? I've been thinking about

her.

B

4 3/4 RSS and Kelli 2 Non RSS (Miss Independent - that's

enough!!)

>

>

> Hello to all!

>

> We were up in Edmonton this morning for a Ped. check-up and....

> Drum roll please.... Olivia has gained 1/2 a pound since the

> convention!! She is officially now about 19lbs. There's been no

> growth but that's OK since the goal right now is to get some meat

on

> her bones, not height velocity.

> The Dr. really likes the smoothie concoction that we've made

even

> though it is quite high in sugar, with Olivia still being very

> underweight we don't have to worry a lot about IR right now so we

> can still give her the high cal smoothies.

>

> That's about it for now!

> Take care everyone,

> Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

> RSS, OI

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Share on other sites

WAY TO GO OLIVIA!!!!!!!! hey leah , give her a high five and a hug

from me!!! see those smoothies/milkshakes really help!!!! we go on

the 20th to have christopher weighed again keep your fingers crossed

for me!!! take care!!!

jodie c.

>

>

> Hello to all!

>

> We were up in Edmonton this morning for a Ped. check-up and....

> Drum roll please.... Olivia has gained 1/2 a pound since the

> convention!! She is officially now about 19lbs. There's been no

> growth but that's OK since the goal right now is to get some meat

on

> her bones, not height velocity.

> The Dr. really likes the smoothie concoction that we've made

even

> though it is quite high in sugar, with Olivia still being very

> underweight we don't have to worry a lot about IR right now so we

> can still give her the high cal smoothies.

>

> That's about it for now!

> Take care everyone,

> Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

> RSS, OI

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Jodie - my name is Aileen Hester and we have a 2 3/4 y/o boy with RSS.

Today we have received multiple e-mails (approx 20) that appear to be

responses from you to other people. Just want to let you know that your

responses are going astray. On the otherhand I'm happy to have a

connection with someone else re: children with RSS. We live in

Northwestern CT & really don't know any other families with RSS - our

household is very busy, considering Jake (with RSS) is number 4 out of 5.

He currently has a G-tube and every couple of months or more frequently

we are ready to pull our hair out over something - he retches a lot & at

times my husband has trouble dealing with it.

I registered online with yahoo awhile ago, but I haven't been

back to it because I went back to work. If you know anyone who would be

willing to talk/e-mail re: issues with G-tubes I would like to know -

Thank you - Aileen Hester ajhester@...

On Thu, 16 Sep 2004 16:51:07 -0000 " Jodie " writes:

WAY TO GO OLIVIA!!!!!!!! hey leah , give her a high five and a hug

from me!!! see those smoothies/milkshakes really help!!!! we go on

the 20th to have christopher weighed again keep your fingers crossed

for me!!! take care!!!

jodie c.

>

>

> Hello to all!

>

> We were up in Edmonton this morning for a Ped. check-up and....

> Drum roll please.... Olivia has gained 1/2 a pound since the

> convention!! She is officially now about 19lbs. There's been no

> growth but that's OK since the goal right now is to get some meat

on

> her bones, not height velocity.

> The Dr. really likes the smoothie concoction that we've made

even

> though it is quite high in sugar, with Olivia still being very

> underweight we don't have to worry a lot about IR right now so we

> can still give her the high cal smoothies.

>

> That's about it for now!

> Take care everyone,

> Leah, mom to 9 years and Olivia 4.75 years, 19lbs!!, 33 " ,

> RSS, OI

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