Re: Sittin on the fence - Update

August 27, 2003

Hi again

Went to new endo today. He has spoken to my old endo about my results to date.

1. Apparently the low WBC happened before. Apparently years ago it was down to

1.9 (no one told me so! those were the days when I didnt realise there was a

support group). Both endos say that the LOW WBC is the graves disease doing it,

not the ATDs - but you guys say other : " that the overdosing does it " - can you

confirm that again?.

2. Anyway, I didn't change to PTU but am staying on methomercazole - but at a

lower dose. This is where it gets scary again: the endos probaby got their

heads together and decided that I should drop to 15mg after being of 45mg -

crazy eh! I remember reading on this site that one should drop more slowly - so

I said that to him. But I told him that I was hesitant to drop so much, so we

agreed on 20mg. Am I on track?

3. He told me to stay on 20mg methomerc. for one month and do the FTs and TSH

again. I told him that I preferred to do another test in 2 weeks. He said it

was a waste of time and I should wait a month. What do u think?

I will be doing another WBC in a week.

I am starting to get to the bottom of this endo stuff. The new one told me

today that the Government doesnt want people overtesting because it costs too

much and that he wanted to do only what was necessary. So I asked if I could

slip a few extras on the form myself. He says he will turn a blind eye on it!

What do u think so far???

Would love to know.

=============================

on

liz.jameson@...

Re: Sittin on the fence

Liz asked:

Or do all the ATDs affect WBC?

Only if they are overdosed in most all cases.

I am still searching for your original labs to compare to todays. ~sigh~

The thing we see often is gals being switched to the 'other' drug and doing

fine.... but they are also put on a lower dose... duh ! So even though they

believe they were allergic to the first drug... the case is never proven

because the LOWER dose was needed on EITHER one of them.

Switching is fine... but do not believe for FACT that if the next one is

given in too high a dose also, you are out of options.

What drug were you able to take before and no problems ?

-Pam L-

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