Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 I've posted some pictures of our little guy, Landen who is now 13 months old. We are in the beginning stages of a possible RSS diagnoses. I know your input is subjective, but very valuable!!! If anyone has time, please check out the pics posted under " Landen " and give me your thots? What do you think? Does he have the " RSS Look? " He is in the 3rd% for weight and 95% for head size. He has been wearing the same clothes (6-9mo) since March! And he eats like a machine! His most significant issue right now is low muscle tone. We will have some testing done (through our geneticist) in October- bone scan, ultrasound on stomach/liver, bloodwork-and hope to have some more answers then. Thanks for all your initial feedback when I posted about a month ago. You all are so encouraging! Cheryl Quote Link to comment Share on other sites More sharing options...
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