Re: Sittin on the fence: TOO LOW now!

[Guest guest]

Hi ,

I hesitate to suggest dosage changes, as I am not a physician, but I would

say a dose reduction is in order, according to your labs and symptoms. I

think the schedule you propose seems like you might be planning on dropping

your dose too quickly. It is best to glide in, as if landing a plane.

That's the way I think about it :-)

Dosages should be maintained for about 2-4 weeks in order to have blood

work results be meaningful. I think dropping to 5mg from 15 is too much;

maybe you could do 10mg for about a week and then if you don't feel hyper,

then do 7.5 for two weeks, and get labs done. Only a rough idea, and

everyone takes their own path. General guideline is to make changes

smoothly and gradually, if possible.

At 07:37 PM 9/15/2003, you wrote:

>Hi again

>

>Can you have a peek at my blood tests and tell me what you think:

>

>Latest blood 9/9/03

>

>FT4 9 (range 10-25)

>FT3 3.15 (range 2.5-6.0)

>TSh 0.38 (.38-4.00)

>

>This too low score was achieved on 15mg of methomercazoe for 2 weeks.

[Guest guest]

Hi . Am I correct in remembering that you're extremely sensitive

to the medication? This would underline the need for you to gradually

decrease. Then again, your already being hypo says something to. Just

wanted to bring this up for the more educated than I who are advising

you.

Take care, Fay

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[Guest guest]

Hi Terry

Spent 12 days on 7.5mg methomercazole. Did blood test.

The results were FT4 10 (10-25) FT3 4.4 (2.5-6.00) and

my GOD! TSH 5.67.

I have never ever had such a silly TSH.

I am in a place where I have never been before.

My endo told me to go down to 5mg immediately (split in half) and do blood in 3

weeks.

I am again worried about the long time again on 5mg.

Am thinking of going on 5mg for a week and then dropping to 2.5mg.

Do you think that is too soon - or will the PLANE CRASH!

Am I worrying too much about the TSH? I am awaiting a miracle to bump my TSH

down. Shish - I hope I'm not here to stay! Is it the ATDs or just my system?

Would love your thoughts! You all told me that I would crash down to hypo land

- you could see it was going to happen.

I thought the TSH would go up slowly. What causes it to race up from 0.38 to

5.67??????

=============================

on

liz.jameson@...

Re: Sittin on the fence: TOO LOW now!

Hi ,

I hesitate to suggest dosage changes, as I am not a physician, but I would

say a dose reduction is in order, according to your labs and symptoms. I

think the schedule you propose seems like you might be planning on dropping

your dose too quickly. It is best to glide in, as if landing a plane.

That's the way I think about it :-)

Dosages should be maintained for about 2-4 weeks in order to have blood

work results be meaningful. I think dropping to 5mg from 15 is too much;

maybe you could do 10mg for about a week and then if you don't feel hyper,

then do 7.5 for two weeks, and get labs done. Only a rough idea, and

everyone takes their own path. General guideline is to make changes

smoothly and gradually, if possible.

At 07:37 PM 9/15/2003, you wrote:

>Hi again

>

>Can you have a peek at my blood tests and tell me what you think:

>

>Latest blood 9/9/03

>

>FT4 9 (range 10-25)

>FT3 3.15 (range 2.5-6.0)

>TSh 0.38 (.38-4.00)

>

>This too low score was achieved on 15mg of methomercazoe for 2 weeks.

[Guest guest]

,

This is where we use our judgement and listen to our body. Frequent labs

will help, and if you have cut your dose too much, you can increase it.

Test, test, test, every 2-3 weeks, until you stabilize; then you can go

back to testing every 4.

At 01:51 AM 9/26/2003, you wrote:

>Hi Terry

>

>Spent 12 days on 7.5mg methomercazole. Did blood test.

>

>The results were FT4 10 (10-25) FT3 4.4 (2.5-6.00) and

>my GOD! TSH 5.67.

>

> I have never ever had such a silly TSH.

[Guest guest]

Hi ,

I'd drop to 5 mg. immediately, as suggested. Your numbers are awfully hypo.

I suspect you'll end up dropping to 2.5 mg. a day within a week, but I

wouldn't go lower than that without giving your body time to adjust. You

could also try to schedule a TSI for those next labs, if you haven't had one

in a while--antibody levels are a great predictor of remission. You may want

to talk to your endo about testing for hashimotos as well. I've never been

there--so don't have any answers on that one, but your lab numbers make me

suspicious.

I find at this point that 2.5 mg. a day is about right for me. If I edge

lower I notice a few symptoms. More and I'm miserably sluggish in every way.

I'm resigned to staying here long-term. But, I never, ever in my wildest

imagination could conceive of having numbers like yours. I stay at the top

of normal range for FT4 and FT3, and my TSH hasn't gone about about .25

ever. So I have a totally different experience.

>

> Reply-To: graves_support

> Date: Fri, 26 Sep 2003 15:51:03 +1000

> To: <graves_support >

> Subject: Re: Sittin on the fence: TOO LOW now!

>

> Hi Terry

>

> Spent 12 days on 7.5mg methomercazole. Did blood test.

>

> The results were FT4 10 (10-25) FT3 4.4 (2.5-6.00) and

> my GOD! TSH 5.67.

>

> I have never ever had such a silly TSH.

>

> I am in a place where I have never been before.

>

> My endo told me to go down to 5mg immediately (split in half) and do blood in

> 3 weeks.

>

> I am again worried about the long time again on 5mg.

>

> Am thinking of going on 5mg for a week and then dropping to 2.5mg.

>

> Do you think that is too soon - or will the PLANE CRASH!

>

> Am I worrying too much about the TSH? I am awaiting a miracle to bump my TSH

> down. Shish - I hope I'm not here to stay! Is it the ATDs or just my system?

>

> Would love your thoughts! You all told me that I would crash down to hypo

> land - you could see it was going to happen.

>

> I thought the TSH would go up slowly. What causes it to race up from 0.38 to

> 5.67??????

>

>

> =============================

> on

> liz.jameson@...

> Re: Sittin on the fence: TOO LOW now!

>

>

> Hi ,

> I hesitate to suggest dosage changes, as I am not a physician, but I would

> say a dose reduction is in order, according to your labs and symptoms. I

> think the schedule you propose seems like you might be planning on dropping

> your dose too quickly. It is best to glide in, as if landing a plane.

> That's the way I think about it :-)

> Dosages should be maintained for about 2-4 weeks in order to have blood

> work results be meaningful. I think dropping to 5mg from 15 is too much;

> maybe you could do 10mg for about a week and then if you don't feel hyper,

> then do 7.5 for two weeks, and get labs done. Only a rough idea, and

> everyone takes their own path. General guideline is to make changes

> smoothly and gradually, if possible.

>

>

> At 07:37 PM 9/15/2003, you wrote:

>> Hi again

>>

>> Can you have a peek at my blood tests and tell me what you think:

>>

>> Latest blood 9/9/03

>>

>> FT4 9 (range 10-25)

>> FT3 3.15 (range 2.5-6.0)

>> TSh 0.38 (.38-4.00)

>>

>> This too low score was achieved on 15mg of methomercazoe for 2 weeks.

>

>

>

[Guest guest]

Hi Terry

Would like to post again for your wordly advice. Am still dragging my feet

around. I am back to jogging the last month to try and bump up my FT4. As you

can see its stabilised at the low end and not the comfort zone for me. I should

be around 15-17. You thoughts???

October 29:

FT4 11 (10-25)

FT3 3.98 (2.5-6.00)

TSH 2.44 (.35-5.0)

Previous

October 7

FT4 10 (10-25)

FT3 4.31 (2.5-6)

TSH 3.11 (.35-5.0)

Sept 25

FT4 10 (10-25)

FT3 4.4 (2.5-6.0)

TSH 5.67 (.35-5.0)

Many thanks and Cheers

=============================

on

liz.jameson@...

Re: Sittin on the fence: TOO LOW now!

>

>

> Hi ,

> I hesitate to suggest dosage changes, as I am not a physician, but I would

> say a dose reduction is in order, according to your labs and symptoms. I

> think the schedule you propose seems like you might be planning on dropping

> your dose too quickly. It is best to glide in, as if landing a plane.

> That's the way I think about it :-)

> Dosages should be maintained for about 2-4 weeks in order to have blood

> work results be meaningful. I think dropping to 5mg from 15 is too much;

> maybe you could do 10mg for about a week and then if you don't feel hyper,

> then do 7.5 for two weeks, and get labs done. Only a rough idea, and

> everyone takes their own path. General guideline is to make changes

> smoothly and gradually, if possible.

>

>

> At 07:37 PM 9/15/2003, you wrote:

>> Hi again

>>

>> Can you have a peek at my blood tests and tell me what you think:

>>

>> Latest blood 9/9/03

>>

>> FT4 9 (range 10-25)

>> FT3 3.15 (range 2.5-6.0)

>> TSh 0.38 (.38-4.00)

>>

>> This too low score was achieved on 15mg of methomercazoe for 2 weeks.

>

>

>

[Guest guest]

Hi, ,

Unfortunately, I don't have any wise advice for you, but had to say: your

numbers look an awful lot like mine, and I'm also feeling hypo. I am

puzzled by the fact that my T4 is low end of range, but my T3 (the more

potent hormone) is mid-range, and I feel this cruddy. I was just about to

reframe some questions to post, but I'll wait and see if you get a

response. Good luck!

-Jill

Re: Sittin on the fence: TOO LOW now!

> >

> >

> > Hi ,

> > I hesitate to suggest dosage changes, as I am not a physician, but I

would

> > say a dose reduction is in order, according to your labs and

symptoms. I

> > think the schedule you propose seems like you might be planning on

dropping

> > your dose too quickly. It is best to glide in, as if landing a plane.

> > That's the way I think about it :-)

> > Dosages should be maintained for about 2-4 weeks in order to have

blood

> > work results be meaningful. I think dropping to 5mg from 15 is too

much;

> > maybe you could do 10mg for about a week and then if you don't feel

hyper,

> > then do 7.5 for two weeks, and get labs done. Only a rough idea, and

> > everyone takes their own path. General guideline is to make changes

> > smoothly and gradually, if possible.

> >

> >

> > At 07:37 PM 9/15/2003, you wrote:

> >> Hi again

> >>

> >> Can you have a peek at my blood tests and tell me what you think:

> >>

> >> Latest blood 9/9/03

> >>

> >> FT4 9 (range 10-25)

> >> FT3 3.15 (range 2.5-6.0)

> >> TSh 0.38 (.38-4.00)

> >>

> >> This too low score was achieved on 15mg of methomercazoe for 2

weeks.

> >

> >

> >

[Guest guest]

Hi

I'm on half 2.5mg now and am feeling much more energetic. Have been to endo and

asked for a TSI test.

Did ask him about block and replace but he obviously never does this because he

jumped all over the place waiving his arms and legs saying that he would never

do that. I noticed someone else from Oz was successful in block and replace.

Maybe she will see this post and jump in.

Am having blood tests tomorrow after being on half 2.5mg for 2 weeks now. Have

my fingers crossed that T4 is up and TSH is down.

Cheers

=============================

on

liz.jameson@...

Re: Sittin on the fence: TOO LOW now!

>

>

> Hi ,

>

> I'd drop to 5 mg. immediately, as suggested. Your numbers are

awfully

hypo.

> I suspect you'll end up dropping to 2.5 mg. a day within a week,

but I

> wouldn't go lower than that without giving your body time to

adjust.

You

> could also try to schedule a TSI for those next labs, if you

haven't

had one

> in a while--antibody levels are a great predictor of remission.

You may

want

> to talk to your endo about testing for hashimotos as well. I've

never

been

> there--so don't have any answers on that one, but your lab

numbers make

me

> suspicious.

>

> I find at this point that 2.5 mg. a day is about right for me. If

I

edge

> lower I notice a few symptoms. More and I'm miserably sluggish in

every

way.

> I'm resigned to staying here long-term. But, I never, ever in my

wildest

> imagination could conceive of having numbers like yours. I stay

at the

top

> of normal range for FT4 and FT3, and my TSH hasn't gone about

about .25

> ever. So I have a totally different experience.

>

[Guest guest]

Hi ,

Don't forget on your labs tomorrow, you want FREE T4,

NOT T4.

And don't sweat the small stuff....TSH...

Mine stayed at zip ( .02 / .002 ) for three years, finally appeared at .45

near remission, and only now at 5 years has , for the very first time ever,

looked half way reasonable.... 1.03 ! ! !

So lets have three cheers for that... though , to tell you the truth, I

think I would be willing to give some of it away. ;-) Dipped down into the

hypo pit for a bit to get it, and don't want it. On my way back up now .

~sigh~

To think, I used to be jealous when I saw all of you find your TSH.

-Pam L-

3 1/2 years Graves', TED, and PTU.

Remission since Jan. 28th. 2002 !

Key: SLOW reduction of PTU (despite an incompetent endo ! ), eight hour

dosing,labs every 4 weeks, improved lifestyle, REAL food/ no processed

pre-made food, herbs, and looking at the big picture.

Triggers are: MSG/any 'flavorings', glutamates ,aspartame, pesticides,high

iodine foods.

_____________________________________________________

Pills alone only help the symptoms. We must help our bodies to heal.

_____________________________________________________

* " What a long, strange, trip it's been " ...Jerry .... Peace*