Re: G tubes and blended diets!!

[Guest guest]

Hi Jody

Hope you and Liam are well. I did see a recipe for blended

concoctions in a newsletter put out by an organization by " Kids with

Tubes " . It is run by speech and language pathologists, nutritionists

and I believe a gastroenterologist. I will try and find the

newsletter later. I bet they have a website - you might be able to

find it yourself!

I think blended diets have gotta be healthier as long as it's

balanced and you supplement with vitamins and minerals etc.

Good luck!

(Ethan and Jillian's Mom)

>

> Hi

> I have been looking into trying Liam with a blended diet,has

anybody

> with a gtube ever tried this?

> Liam is on neocate with polyjoule added at the moment, my main

> concern will be how he digests real food after all this formula.

> An advantage i see is that the thickened food will actually stop

> some reflux.

> We have tried a couple of boluses, one had blended oats,banana and

> soy milk(about 60mls) the other had steak, pasta and carrot, he

> tolerated these well.

> I will have to talk to a dietician and work out calories, not to

> mention buying the blender which will get the food thin enough.

> Just wondered if anyone had an opinion?

> Thanks

> Jody(mum to Liam 3.3 RSS,about 10.2kg)

[Guest guest]

I have not tried this with Max, but the last time he was being tube

fed, the insurance company refused to pay for formula because they

said we should be doing what you are doing. When I ran it by Dr.

H., she agreed. While she was willing to help us fight to get it

paid, she did think that blending our own food and putting it down

the tube was a good option.

I also know there is a " formula " that is made this way, but I have

never tried it nor do I know anyone personally who has.

I hope the blending really works and that the reflux is helped for

Liam. After talking to Max about how his reflux feels, I just did

not realize how uncomfortable it really is and how it affects his

day and mood.

Jodi Z.

[Guest guest]

Jodi,

The formual you are referring to is called Compleat. It is a blenderized tube

feeding (has

meat and vegetables in it). Dr. H recommended this for . We tried it

right after

the convention for a week or so. The only problem with it for us was that it

has less

calories than the one he is on now, and he can't tolerate any more volume at

night, and I

don't want to have to go back to bolus feeding during the day. However, I am

considering

giving this a try again if I can add something to it to give it more calories.

I don't think

's GI doctor here wants to put him on this formula. We have an

appointment with

him & Dr. H in December, so we'll see what happpens.

Kim C.

The formula

>

> I have not tried this with Max, but the last time he was being tube

> fed, the insurance company refused to pay for formula because they

> said we should be doing what you are doing. When I ran it by Dr.

> H., she agreed. While she was willing to help us fight to get it

> paid, she did think that blending our own food and putting it down

> the tube was a good option.

>

> I also know there is a " formula " that is made this way, but I have

> never tried it nor do I know anyone personally who has.

>

> I hope the blending really works and that the reflux is helped for

> Liam. After talking to Max about how his reflux feels, I just did

> not realize how uncomfortable it really is and how it affects his

> day and mood.

>

> Jodi Z.